The PURA Syndrome Foundation’s mission is to support and drive research, raise awareness in the general community, as well as connect, educate, serve, and empower families impacted by PURA Syndrome. Access to care is critical to the wellbeing of our community. Understanding your health plan is essential to making the most of your coverage and accessing the care you need. The following questions are designed to learn more about what type of insurance you have as well as your experience and confidence in navigating your health insurance. The survey should take less than 5 minutes for you to complete and the information received will be utilized to identify any resources we may need to develop to assist you in navigating and utilizing your health plan.