The PURA Syndrome Foundation’s mission is to support and drive research, raise awareness in the general community, as well as connect, educate, serve, and empower families impacted by PURA Syndrome. Access to care is critical to the wellbeing of our community. Understanding your health plan is essential to making the most of your coverage and accessing the care you need. The following questions are designed to learn more about what type of insurance you have as well as your experience and confidence in navigating your health insurance. The survey should take less than 5 minutes for you to complete and the information received will be utilized to identify any resources we may need to develop to assist you in navigating and utilizing your health plan.

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* 1. Do you currently have health insurance coverage?

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* 2. Which of the following types of insurance do you currently have? (Check all that apply)

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* 3. How did you enroll in your current health insurance plan?

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* 4. How long have you had your current health insurance coverage?

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* 5. Do you have more than one type of health insurance coverage?

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* 6. If your answer to Q1 was No, why do you currently not have health insurance? (Check all that apply). If you answered Yes to Q1, please skip and continue to the next question.

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* 7. How confident do you feel in understanding the details of your health plan and what it covers?

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* 8. How comfortable are you using your health care coverage to access services and benefits?

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* 9. What aspects of your health plan do you find most confusing? (Select all that apply)

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* 10. Do you know where to go or who to ask to find out what your health plan covers?

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* 11. Have you ever experienced challenges in accessing the care or services you need through your health plan?

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* 12. If you answered Yes to Q11, what care or services did you have difficulty accessing (Select all that apply):

Thank you for participating, please click on DONE below.

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