About the Skin Investigation Network of Canada (SkIN Canada)

Skin conditions are a leading cause of overall disability and death in Canada. Despite substantial contributions to skin research by Canadian researchers, much of the work is conducted in relative isolation by a dispersed research community. The Skin Investigation Network of Canada (SkIN Canada) will expand skin research expertise, create new collaborations, and enhance skin health through innovation. We have brought together patients and an interdisciplinary team of leading researchers and clinicians across the country who are tackling the mechanistic, clinical, health systems, and population health questions for a broad range of skin conditions.
 
Disease Areas of Focus
There are three disease areas on which the network will focus. However, we expect that connections made among patients and researchers through SkIN Canada may also lead to interesting research questions and additional projects outside of these three disease areas of focus.
  1. Inflammatory skin conditions
  2. Wound healing, skin fibrosis and regeneration
  3. Skin cancer
 
We are looking for people living with skin disorders - or caring for those who do - who are interested in research to become Patient Research Partners. We are looking for 14 Patient Research Partners to help shape skin disease research in Canada.

The CSPA is looking for 14 Patient Research Partners to help shape skin disease research in Canada:
 
  • Patient Advisory Council (PAC) - 6 patients, 3 of whom will also serve on the Steering Committee
  • Biobanking Committee - 1 patient
  • Canadian Network for Skin disease Trials (C-NeST) Management Committee - 2 patients
  • Knowledge Translation Committee - 1 patient
  • Training Committee - 1 patient
  • Working Groups on each of the disease areas of focus of SkIN Canada
    • Inflammatory Skin Conditions - 2 patients
    • Wound Healing, Skin Fibrosis and Regeneration - 2 patients
    • Skin Cancer - 2 patients

Information about these specific roles, the PAC, the committees and the working groups and the commitments can be found on the CSPA website.

The information we are collecting here will only be used for the purposes of selecting people for the various Patient Research Partner roles with SkIN Canada.

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* 1. Have you read the information about the Role and Expectations of Patient Research Partners on the CSPA website?

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* 2. Why are you interested in being a Patient Research Partner?

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* 3. How do you see yourself contributing as a Patient Research Partner?

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* 4. Are you interested in a specific role? Please select those that interest you.

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* 5. Are you a patient or a caregiver?

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* 6. Are you involved with any patient organizations or communities? (This is an asset, not a requirement.)

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* 7. Where do you live?

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* 8. What is your gender identity?

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* 9. Which languages do you speak?

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* 10. Please provide your contact information so that CSPA can follow up with you about your interest.

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* 11. Would you like to stay in touch via email and receive updates about the Network? If so, please provide your email here and we will add you to our mailing list.

Thank you for your interest in becoming a Patient Research Partner and for taking the time to tell us more about yourself!
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