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CanStroke Recovery Trials Platform, StrokeCog Clinical Trials Training Platform, and Canadian Stroke Consortium

Patient Engagement Survey - Priorities Assessment

Patient Engagement involves research that engages patients as partners, addresses patient-identified priorities, and/or aims to improve patient outcomes. This is defined by CIHR as “meaningful and active collaboration in governance, priority setting, conducting research and knowledge translation.” The term “patient” is used as an overarching term inclusive of individuals with personal experience of a health issue and informal caregivers, such as family and friends.

Engaging patients is integral to improving healthcare outcomes, ensuring research aligns with the needs and preferences of patients, and fostering innovation in healthcare practices and policies. In Canada, engaging patients in stroke-related grant applications is becoming increasingly prioritized.

CanStroke Recovery Trials Platform, StrokeCog Clinical Trials Training Platform and the Canadian Stroke Consortium are looking to identify ways to ensure that our members are provided with the appropriate tools and support to conduct meaningful Patient Engagement initiatives.

The goal of this survey is to identify the needs, gaps, and priorities of our membership which will guide the direction and development of a Patient Engagement strategy.

This survey should take approximately 5 minutes to complete.
1.Affiliation (select all that apply):(Required.)
2.Primary Role:(Required.)
3.Are you actively involved in conducting research?(Required.)
4.If Yes, have you previously engaged patients in your research or clinical projects? (Required.)
5.What challenges have you faced when engaging patients in your work? (Select all that apply)(Required.)
6.On a scale of 1 (unimportant) to 5 (very important), how important do you think it is to engage with patients at each of the following research stages? Source: CIHR CIHR
Unimportant
Of Little Importance
Moderately Important
Important
Very Important
Priority setting and planning
Development of the research proposal
Scientific review
Ethics review (for some types of research)
Oversight of a research project
Recruitment of research participants (for some types of research)
Data collection
Data analysis and interpretation
Knowledge exchange and translation
Evaluation in quality assurance
7.Which of the following ways do you anticipate engaging patients in your current or future research activities?
8.The Canadian Heart Function Alliance (www.hub.heartlife.ca/researchers) matches researchers/clinicians/trainees with patients for engagement opportunities. Would this type of service be useful in your work?
9.If Yes or Unsure to Q8 (skip if No)

What features would you value most in a Patient Engagement matching service? (Select all that apply)
10.Who should be responsible for defining the matching criteria?
11.Do you currently have the budget and capacity to engage patients in your research projects?
12.In the past year, have you actively sought out resources or guidance on Patient Engagement?
13.Are you planning to request funding for Patient Engagement in future grants?
14.Do you have any additional comments or suggestions regarding Patient Engagement or the proposed matching service?
Thank you for completing this survey. Your insights are invaluable to shaping the future of Patient Engagement in stroke research and care.

Please email Holly (CanStroke) at holly.vogel@ucalgary.ca or Vanessa (CSC) at research@strokeconsortium.ca should you have any questions or additional feedback.