Pre-Survey – Parents / SDM Questions – Lucan - SIL

We’re so grateful you’ve taken a few minutes to share your experience with us.

We are in the process of developing supportive living at a new home we will be opening in Lucan — called Highview Lucan. This home will bring together adults with developmental disabilities and neurodiversity, seniors, and people living with dementia in one shared home.

As we shape this, we are intentionally listening to parents and Substitute Decision Makers — especially those who have been walking this journey for many years. Your lived experience matters deeply, and it helps guide us in creating something that truly feels like home — where people can live with independence, connection, and purpose in daily life, and where families can feel a sense of trust and peace of mind.

My name is Joy Birch. Alongside my role at Highview, I am also a parent. My son is nearly 18 and has an intellectual disability. I understand, personally, the weight of thinking about what comes next — the mix of urgency, uncertainty, and worry — and also the joy, laughter, and living-in-the-moment that are part of this life.

This short survey is one small way for us to learn from you. Your responses will help us better understand what families are experiencing today and what matters most looking ahead.

If there are two parents or decision-makers in your household, you’re welcome to complete the survey more than once — we value each perspective.

This is not a sales process — it is truly part of our research and listening. If, at any point, you would like to learn more about the home opening in July, you are welcome to visit our website or reach out to us directly.

There are no right or wrong answers. Please answer in whatever way feels most true to your experience.

All responses will be kept confidential and used only to help shape supportive living at Highview Lucan.

Thank you again — your time and your voice truly mean a lot.
1.What is your age range?
2.What is your relationship to the person you support?
3.What is the age of your son/daughter (or the person you support)?
4.Where do you currently live? (city or region is fine)
5.How would you describe your community:
6.What is the highest level of education you’ve completed
7.What would best describe your current employment status:
8.If you’re comfortable sharing, what is your combined household income?
9.Where does your son/daughter (or the person you support) currently live?
10.Who is primarily responsible for their day-to-day support?
11.On a typical day, how many hours of support are needed?
12.What feels most challenging right now? (Select up to 3)
13.How supported do you feel today?
14.When you think about your son/daughter (or the person you support), what matters most? (Select up to 5)
15.When you think about your own experience as a parent/decision-maker, what matters most to you? (Select up to 3)
16.Have you started planning for the future for your son/daughter (or the person you support)?
17.If yes or somewhat — what have you explored?
18.What do you think will help you know that it’s time to make a change?
19.Which term feels most natural to you when describing the person you support?
20.When you think about planning for your son/daughter's future living situation, how strongly do you feel about: a sense of urgency. (1 = not at all, 5 = very strongly)
21.When you think about planning for your son/daughter's future living situation, how strongly do you feel about: an uncertainty about what to do. (1 = not at all, 5 = very strongly)
22.When you think about planning for your son/daughter's future living situation, how strongly do you feel that this feels complicated to navigate . (1 = not at all, 5 = very strongly)
23.When you think about planning for your son/daughter's future living situation, how strongly do you feel about: worry or concern . (1 = not at all, 5 = very strongly)
24.When you think about planning for your son/daughter's future living situation, how strongly do you feel about: Feeling tired or overwhelmed. (1 = not at all, 5 = very strongly)
25.When you think about planning for your son/daughter's future living situation, how strongly do you feel about: Another word you would use, please put below in comments. (1 = not at all, 5 = very strongly)
26.Which of the following best describes where you are right now?
27.What do you feel is getting in the way of making a change right now? (Select up to 3)
28.What does “a good life” look like for your son/daughter?
Current Progress,
0 of 28 answered