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Your Opinion Matters | MDF eNewsletter | Fall/Winter 2025
1.
How often do you read the MDF Research Digest?
Every week
Most weeks
Occasionally
Rarely
Never
2.
What content do you find most valuable in the MDF Research Digest?
(Select all that apply.)
Advances in movement disorders research
Advances in drug development trials and treatments
Clinical trials and medical study opportunities
Patient profiles
Other
(Please specify.)
3.
How satisfied are you with the overall content of the MDF Research Digest?
Very satisfied
Satisfied
Neutral
Dissatisfied
Very dissatisfied
4.
How do you prefer to receive updates on movement disorders research?
(Select all that apply.)
MDF Research Digest
Social media: MDF Facebook page
Website: www.movementdisordersfoundation.org
Webinars
Other (Please specify.)
5.
Which other MDF communications resources do you utilize?
(Select all that apply.)
Website: www.movementdisordersfoundation.org
Social media: MDF Facebook page
Webinars
None of the above
Other (Please specify.)
6.
Is the MDF Research Digest your sole online source for information on movement disorders research?
Yes
No *
* If no, please list other online resources you use.
7.
How likely are you to recommend the MDF Research Digest?
Very likely
Likely
Neutral
Unlikely
Very unlikely
8.
Which movement disorder(s) is/are your primary area(s) of interest?
(Select all that apply.)
Ataxia (Friedreich, spinocerebellar, et. al.)
Dystonia (focal, multifocal, et. al.)
Essential tremor (familial, sporadic, et. al.)
Functional movement disorders
Huntington's disease
Multiple System Atrophy (MSA)
Myoclonus
Parkinson's disease
Atypical parkinsonian disorders
Restless leg syndrome
Tardive dyskinesia
Tic disorders (Tourette syndrome, et. al.)
None of the above
Other (Please specify.)
9.
What is your primary association with your selected movement disorder(s)?
(Select all that apply.)
Person with diagnosis
Undiagnosed (genetic predisposition)
Caregiver (family or friend) for person with diagnosis
Caregiver (professional)
Clinician
Researcher
Educator
Student
Industry professional
Other (Please specify.)
10.
If you are a person who's been diagnosed with a movement disorder, what is the recency of your diagnosis?
Recently diagnosed (one year or less)
Diagnosed (one to ten years)
Diagnosed (ten or more years)
Undiagnosed (genetic predisposition)
Not applicable
Other (Please specify.)
11.
If you are a caregiver, what is the recency of the patient's diagnosis?
Recently diagnosed (one year or less)
Diagnosed (one to ten years)
Diagnosed (ten or more years)
Undiagnosed (genetic predisposition)
Not applicable
Other (Please specify.)
12.
MDF funds innovative, multi-disease movement disorders research. Would you be interested in learning more about our Young Investigator Pilot Grant program and ways to get involved?
Yes
No
13.
What additional content would you like to see featured in the MDF Research Digest?
14.
What is your age range?
18-24
25-34
35-44
45-54
55-64
65 or older
