Use your lived experience of EB to help us fund the best research



Please sign up to hear more about how you can help us decide what research we fund in 2024, whether that's attending one of the meetings we run to talk you through the process of reviewing the research grants OR if you'd like to be involved without attending one of the meetings.

There will be two meetings taking place, one on the 18th April and another on 19th April.

Our members’ voices are so important to us in our journey to find innovative and appropriate research to help fight EB.

There are many experts involved in helping DEBRA decide what research to fund - clinical and research experts from different fields, our Scientific Advisory Panel, our Charitable Purposes Committee, and ultimately our board of trustees makes the final decision.

Members will review and rate the research based on their lived experience of EB. This is a vital part of the puzzle and will help DEBRA to fund life-changing research and put our resources to the very best use possible.

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* 1. Are you a DEBRA member?

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* 2. Your details

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* 3. We will be running two online meetings to explain how to review the research grant applications, and to answer any questions you may have, these are taking place on 18th and 19th of April 2024.


Please highlight how you would like to be involved :

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* 4. Any other comments

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