Dental Care Patient Survey

The aim of this survey is to increase understanding of the dental care experience of individuals living with bleeding disorders. The results of this survey may be published.
This survey has been funded and made in collaboration with Nordic Pharma UK. No patient identifiable information will be passed to Nordic Pharma UK
UK-NPSP-2400003
February 2024
1.What is your specific bleeding disorder?
2.If you attend a UK Haemophilia Centre, which one?
3.How would you classify your disease severity?
4.Age
5.Sex
6.How often do bleeding gums impact your quality of life?
7.How often do you experience bleeding gums when brushing your teeth?
8.If you develop bleeding gums at home, how do you manage it?
9.How do you access dental care?
10.How often do you attend the dentist?
11.As a person living with a bleeding disorder, on a scale of 1-5 (1 being very easy and 5 being very challenging) how have you found accessing routine dental care?
12.As a person living with a bleeding disorder, on a scale of 1-5 (1 being very easy and 5 being very challenging) how have you found accessing dental care for more serious procedures?
13.Does your centre, if you have one, work out a treatment plan to cover your bleeding disorder for more serious dental procedures?
14.Are you satisfied with your dental care, on a scale of 1-5 (1 being very dissatisfied and 5 being very satisfied)?
15.How often do you experience bleeding gums when receiving dental treatment?
16.Do you take any measures to prevent gum bleeding prior to receiving dental treatment, if so specify?
17.If you experience bleeding gums during dental treatment, what is your treatment preference?
18.Does the prospect of potentially experiencing bleeding gums make you reluctant to seek dental treatment?
19.Have you ever needed to go to your local haemophilia centre to get further treatment to manage prolonged bleeding after dental treatment?
20.Are there any suggestions you could make to improve your dental care experience?
21.How does bleeding gums impact you?
22.Further comments regarding dental care for people living with a bleeding disorder.