This quick TWO PAGE survey accompanies the discussion paper – ADHD and London’s BAME communities, which is available from the publications pages at www.rota.org.uk.

Between November 2011 and February 2013, ROTA delivered the Shaping the Future seminar series, which considered educational reforms and the current state of play in terms of educational inequality in the capital. A concerning discussion point that came up at many of the seminars was that growing numbers of BAME children and young people are being diagnosed with Attention Deficit/Hyperactivity Disorder (ADHD) and pressurised to take medication by healthcare practitioners and schools.

ROTA launched this survey in an effort to address the dearth of data and information about ADHD and BAME communities in the UK. Through completing this survey you will be contributing to the initial evidence base about ADHD and BAME communities in the UK and action to ensure that those with ADHD are receiving appropriate care and support.

Please explain your answers to the questions as fully as possible, using anecdotes and evidence from your personal or professional experience where possible. Your responses will be completely confidential.

The deadline for this survey is 20th December 2013.

ROTA is a social policy organisation focused on issues impacting on Black, Asian and minority ethnic (BAME) communities. You can find out more at www.rota.org.uk.

If you have any questions, please contact Barbara Nea, Senior Policy Officer, on barbara@rota.org.uk or 020 7697 4093.

* 1. Please tell us your ethnicity (we are particularly interested in your ethnicity if you are sharing personal or family experience of ADHD as this will help us gather information as to how children and young people from different ethnic groups access appropriate treatment and support).

* 2. Please select the categories which best describe you

* 3. Do you feel the rates of diagnosis of ADHD in London are staying the same or growing? Please explain your answer.

* 4. Do you feel healthcare practitioners consistently stick to standard diagnostic criteria when diagnosing ADHD? Please explain your answer (see the section on diagnosis and treatment on page 4 of the discussion paper which accompanies this survey, which is available from the publications pages of ROTA's website at www.rota.org.uk).

* 5. Do you feel appropriate alternative treatments, other than medication, are easily accessible to children and young people in London who have been diagnosed with ADHD. Please explain your answer (see 'treatment' section of the discussion paper available from the publications pages at www.rota.org.uk).

* 6. Do you think there is greater prevalence of ADHD among particular ethnic groups? Please explain your answer using anecdotes and evidence from your experience where possible.

* 7. Does the level of awareness about ADHD among different ethnic groups vary in London? Please explain your answer using anecdotes and evidence from your experience where possible.

* 8. Do you feel that attitudes towards ADHD and its treatment are different among different ethnic groups? Please explain your answer using anecdotes and evidence from your experience where possible.

* 9. Are you aware of any data or academic or other literature or commentary about ADHD and ethnicity in the UK? If so, please reference.

* 10. Do you feel the standard criteria used in diagnosing ADHD are strictly adhered to by healthcare and other relevant practitioners? Please explain your answer using anecdotes and evidence from your experience where possible.

* 11. Do you feel that children and young people from particular ethnic groups may be at greater or lesser risk of mis-diagnosis with ADHD? Please explain your answer using anecdotes and evidence from your experience where possible.

* 12. What type of treatment for ADHD is most accessible to BAME children and young people diagnosed with ADHD? Please explain your answer using anecdotes and evidence from your experience where possible.

* 13. Do you feel the treatment received by BAME children and young people with ADHD is appropriate and adequate? Please explain your answer using anecdotes and evidence from your experience where possible.

* 14. Do BAME children and young people with ADHD face any particular barriers in accessing appropriate treatment? Please explain your answer using anecdotes and evidence from your experience where possible.

* 15. Do you have any further comments that you would like to add (thoughts that the questions have not picked up or general comments on the discussion paper would be very welcome).

* 16. This is a pilot survey. We hope to conduct a more in-depth survey next year. We also hope to conduct interviews and focus groups. We would welcome your input then too. If you would like to remain involved in this work to find out more about ADHD and BAME communities in the UK please provide your name and contact details here. Thank you for your valuable input.

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