Skip to content
2022 Epilepsy Stigma Survey
*
1.
What is your connection to epilepsy?
(Required.)
I have epilepsy
I provide care for a spouse, child or family member who has epilepsy
I don't have a personal connection to epilepsy
2.
How long since you were (or your loved one was) diagnosed with epilepsy?
Less than 1 year
At least 1 year but less than 3 years
At least 3 years but less than 5 years
At least 5 years but less than 10 years
10 years or more
None of the above
3.
After being diagnosed, how long did it take to share your story?
Less than 1 year
At least 1 year but less than 3 years
At least 3 years but less than 5 years
At least 5 years but less than 10 years
10 years or more
None of the above
4.
How do you identify?
Female
Male
Gender Diverse (gender non-conforming and/or transgender)
Other (please specify)
5.
What is your age?
Under 18
18-24
25-34
35-44
45-54
55-64
65+
6.
What is your highest level of education?
High School
College
Masters Degree(s)
PhD(s)
Medical Degree, Law Degree
Other (please specify)
7.
Please provide the race or ethnicity that best describes you
8.
Questions on Stigma
Yes
No
Do you feel ashamed of your epilepsy?
Yes
No
Do you try to hide your epilepsy?
Yes
No
Do you worry about others finding out about your epilepsy?
Yes
No
Do you feel you should be blamed for your epilepsy?
Yes
No
Does concern about being honest about your epilepsy prevent you from going to the doctor?
Yes
No
Does concern about being honest about your epilepsy prevent you from getting necessary tests?
Yes
No
Are you ever embarrassed by your epilepsy?
Yes
No
Does embarrassment keep you from talking about your epilepsy?
Yes
No
Does embarrassment keep you from getting services that would make your life easier (transportation, etc.)
Yes
No
Do you hide your epilepsy from co-workers?
Yes
No
Do you hide your epilepsy from those you date?
Yes
No
Do you hide your epilepsy from friends?
Yes
No
Do you hide your epilepsy from family?
Yes
No
Do attitudes about epilepsy prevent you from doing things you love?
Yes
No
Do attitudes about epilepsy prevent you from taking care of your health?
Yes
No
Do attitudes about epilepsy have an impact on your financial success?
Yes
No
9.
Please share the following
Yes
No
Do you see an epileptologist?
Yes
No
Are you concerned about SUDEP?
Yes
No
Are you concerned about stigma?
Yes
No
Has anyone ever talked to you about rescue medications?
Yes
No
10.
Please share the following
Your location (state, country)
Are you living with any other chronic conditions?
What types of seizures do you have?
Current Progress,
0 of 10 answered