1. Internet Information Statement

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Approved by the Human Subjects Committee University of Kansas, Lawrence Campus (HSCL). Approval expires one year from 1/12/2012. HSCL #19777

The Department of Special Education at the University of Kansas supports the practice of protection for human subjects participating in research. The following information is provided for you to decide whether you wish to participate in the present study. You should be aware that even if you agree to participate, you are free to withdraw at any time without penalty.

Thank you so much for your interest in this study! Parents/Caretakers are invited to participate in a survey about the topic of Menstruation (period) of Girls with Developmental Disabilities. This survey is being conducted by Hye Ran Park, a doctoral candidate in special education at the University of Kansas.

What is the purpose of this study?
As you know, menstruation (period) is one of the puberty symptoms for every female regardless of whether or not a disability is present. However, there is little information or guidance for the parent or caretaker regarding the preparation of the young female with a developmental disability for menstruation (periods) or about how to help her care for herself to whatever degree the young woman can. Thus, your help and participation are needed in this survey in order to develop ways to provide valuable information and support for families of females with developmental disabilities about menstruation (periods).

What does this study involve?
This study involves the completion of an online survey. If you agree to participate in this survey:
• You will follow the link to the SurveyMonkeyTM website to find the survey
• This survey should take no longer than 30 minutes to complete

The content of the questionnaires should cause no more discomfort than you would experience in your everyday life. Although participation may not benefit you directly, we believe that the information obtained from this study will help us gain a better understanding of menstrual support for girls with developmental disabilities. Your participation is solicited, although strictly voluntary. Your name will not be associated in any way with the research findings. It is possible, however, with internet communications, that through intent or accident someone other than the intended recipient may see your response.

If you would like additional information concerning this study before or after it is completed, please feel free to contact us by phone or mail.

Completion of the survey indicates your willingness to participate in this project and that you are at least age eighteen. If you have any additional questions about your rights as a research participant, you may call (785) 864-7429, write the Human Subjects Committee Lawrence Campus (HSCL), University of Kansas, 2385 Irving Hill Road, Lawrence, Kansas 66045-7563, or email irb@ku.edu.

Sincerely,

Hye Ran Park, Deborah Griswold, Ph. D.
Principal Investigator Faculty Supervisor
Department of Special Education Department of Special Education
University of Kansas University of Kansas
Lawrence, KS 66045 Lawrence, KS 66045
blueran@ku.edu dgriz@ku.edu

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