Patient-Centered Insights on Treatment Adherence and Social Determinants of Health

People of all ages with autosomal dominant polycystic kidney disease (ADPKD) in the United States are invited to join an online study run by the PKD Foundation’s research team.  

 

Where you live, your finances, and your community are all social factors that can affect your lifestyle and health. These factors may also impact how well people with ADPKD stick to a treatment plan. We're curious to know more about these social factors and learn how they may be impacting ADPKD clinical management. By sharing your experiences, you can help us better understand ADPKD.  

 

The Patient-Centered Insights on Treatment Adherence and Social Determinants of Health study is approved by the Institutional Review Board (IRB) and ensures that your personal health information (PHI) is kept private and confidential. We'll collect this information through the ADPKD Registry and through social media platforms. If you choose to participate through social media, your information will be added and stored anonymously in the Survey Monkey platform. This survey should take 5-10 minutes to complete.