Patient involvement in healthcare professionals’ education - A survey for patients and patient organisations

About this survey

What is the survey about?

Through this survey we hope to gain a better understanding of how common it is for patients (individual patients or patient organisations) to participate in continuing professional development / continuing medical education (CPD/CME) activities, what kind of activities they participate in, and what their experiences are like, as well as get patients’ recommendations on how to improve this.

Who is the survey for?

The survey is meant for individual patients, patient advocates and experts, family members, informal caregivers, or representatives of patient organisations.

Do I need to know about CPD/CME to answer the survey?

You do not need in-depth knowledge on the topic to complete this survey. Even if you or your patient organisation has never participated in CPD/CME activities, you can still give your opinion about some aspects of it.

How much time will it take?

This survey consists of a mix of open and multiple-choice questions. It should take around 15-20 minutes to complete. Parts 3 and 4 are optional. Please do try to answer all the questions if you can; in our analysis we can only take into consideration completed surveys in order to have reliable and comparable results.

Can I see the questionnaire before answering?

To prepare your answers in advance or to consult with colleagues, you can take a look at the questionnaire in pdf format here.

What is the deadline for completing the survey?

The survey is open until 31 January 2021 (extended deadline)

How will you protect my data and privacy?

You are under no obligation to participate in this survey. If you choose to do so, your replies will remain anonymous. EPF is managing the survey, and we will treat the results as strictly confidential. We only ask for information that is needed to analyse the results, for example “demographic”, country and disease-area information. This will also remain anonymous. No personal information will be published.

By completing and submitting this survey you are providing your informed consent.

How will the survey responses be used?

We will use the survey results to identify gaps and need for further actions as well as planning specific activities towards increasing patient involvement in CPD/CME.

We will publish a summary report of the survey results, which will be freely available on EPF’s website. The report will include information in a non-identifiable form.

We may wish to conduct personal interviews at a later stage to gain more information. For this we will always ask for permission separately. Completing this survey does not oblige you in any way to participate in further activities.

More questions?

If you need additional information about the questionnaire or clarifications on the content, please do not hesitate to write to: policy@eupatient.eu

Thank you for your support!

The EPF Secretariat