Resources for Clinic Visits and Research Visits - PMSF Needs Assessment Survey

The Phelan-McDermid Syndrome Foundation is seeking input from our community to identify the types of resources that may be helpful for you and your loved one during clinic visits or research visits. Based on your responses, we will create resources available to you on our website!

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* 1. What specific procedures would you want resources for? Rank the following options (1=Most wanted)

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* 2. What other specific procedure would you like a resource for?

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* 3. What pre-visit guides or resources would be helpful? Rank the following options. (1=Most wanted)

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* 4. What else would be helpful to prepare for or during clinic or research visits?

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* 5. What type of resources would be helpful to use with your loved one?

Social stories

Visual schedules

Checklists

Other (please specify)

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* 6. What type of resources would be helpful for you?

1-page summary or infographic

Simple printable checklist

QR Code to bring up on phone

Short video explaining resource

Other (please specify)

Resources for Clinic Visits and Research Visits - PMSF Needs Assessment Survey

Question Title

* 1. What specific procedures would you want resources for? Rank the following options (1=Most wanted)

Question Title

* 2. What other specific procedure would you like a resource for?

Question Title

* 3. What pre-visit guides or resources would be helpful? Rank the following options. (1=Most wanted)

Question Title

* 4. What else would be helpful to prepare for or during clinic or research visits?

Question Title

* 5. What type of resources would be helpful to use with your loved one?

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* 6. What type of resources would be helpful for you?

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* 7. Additional suggestions