Women with Parkinson's Survey

A survey of the effect of women's hormones on PD symptoms

This survey has been put together by Richelle Flanagan, a founding member of the PD Avengers to gather some statistics around the impact of hormones on womens PD symptoms. There is no identifying data and the results will be used to highlight any gaps in care and research in this area.

Question Title

* 1. Do you suffer from worsening of your PD symptoms around your menstrual period?

Yes

Question Title

* 2. If your symptoms get worse around your menstrual periods, please tick all the motor symptoms that get worse for you, tick all that apply

Bradykinesia (slowness of movement)

Rigidity (stiff muscles)

Tremor

Low voice volume

Dyskinesia

Dystonia

Question Title

* 3. If your symptoms get worse around your menstrual periods, please tick all the non - motor symptoms that get worse for you, tick any that apply

Constipation

Nausea

Swallow issues

Urinary urgency

Going to pass urine more than usual

Excessive sweating

Low blood pressure

Depression

Apathy

Anxiety

Impulse control disorder (e.g. binge eating, shopping)

Excessive daytime sleepiness

Insomnia

Restless leg syndrome

Reduced ability to smell

Pain

Fatigue

Weight changes

Question Title

* 4. If your symptoms get worse around your menstrual cycle, please indicate when they seem to be worse, tick all that apply

Week before period is due

Week (s) of bleeding

Week (s) after bleeding stops

Question Title

* 5. Perimenopause means "around menopause" and refers to the time during which your body makes the natural transition to menopause, marking the end of the reproductive years. If you are perimenopausal do you notice your symptoms fluctuate randomly?

Yes

Question Title

* 6. Perimenopause means "around menopause" and refers to the time during which your body makes the natural transition to menopause, marking the end of the reproductive years. If you are perimenopausal do you feel its more difficult to control your symptoms?

Yes

Question Title

* 7. If you have gone through the menopause, do you feel your symptoms are

Better

About the same

Worse

Question Title

* 8. Have you had Hormone replacement therapy?

Yes

Question Title

* 9. If you are on HRT or had HRT, were your symptoms

Better

About the same

Worse

Question Title

* 10. If you are on HRT, or had HRT, did you start

During Perimenopause

After menopause

Question Title

* 11. Has your neurologist every discussed your hormones and the possible impact on PD symptoms?

Yes

Question Title

* 12. Has you neurologist ever adjusted your medications around your menstrual cycle?

Yes

Question Title

* 13. Has your neurologist ever suggested HRT?

Yes

Question Title

* 14. Has your neurologist ever discussed perimenopause/menopause and its possible effects on PD with you?

Yes