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Governance of Enduring Linkage of CQR Data to Administrative Data: A National Guide

Thank you for participating in this consultation.

This survey seeks feedback on the draft of the Governance of Enduring Linkage of Clinical Quality Registry Data to Administrative Data: A National Guide (the Guide). The purpose of this consultation is to inform refinement of the Guide prior to finalisation.

The Guide has been developed through the CROSS‑Link project, drawing on input from clinical quality registries (CQRs), data custodians, data linkage units, ethics committees, consumers, and policy stakeholders. It is intended to support consistent, transparent, and well‑governed approaches to enduring data linkage of CQRs across Australia.

The draft Guide can be accessed at https://www.phrn.org.au/projects/cross-link/.

This survey focuses on the overall clarity, relevance, and usability of the Guide. We are interested in whether the Guide:
  • clearly articulates its purpose and scope
  • provides useful guidance for different stakeholders
  • includes an appropriate level of detail
  • addresses key risks and considerations
  • is practical to apply in real‑world settings

Please note that we are not seeking detailed editorial or formatting feedback (e.g. wording changes, grammar, or layout suggestions) at this stage.

The survey includes 11 questions and should take around 10–15 minutes to complete, depending on your familiarity with the Guide.
You do not need to respond to every question if some are not relevant to your experience.

Responses will be reviewed and considered in the development of the final version of the Guide.

Please complete the survey by Sunday 23 August 2026.

Privacy and Confidentiality

Participation in this survey is voluntary. We are not collecting personal information such as names, addresses, or contact details. Respondents may choose to identify the organisation they are representing.

Survey responses will be used to inform refinement and finalisation of the Governance of Enduring Linkage of Clinical Quality Registry Data to Administrative Data: A National Guide. Responses will be reviewed by the project team, and any reporting of consultation findings will be presented in aggregated or de-identified form where appropriate.

Survey data will be stored securely and accessed only by members of the project team involved in analysing consultation feedback.
About You
1.Are you responding:
2.If responding on behalf of an organisation, please provide the name (optional):
3.Which of the following best describes your role? (select all that apply)
4.How would you describe your familiarity with data linkage?
5.Have you reviewed the draft guide before responding?
Consultation Questions
6.Are there any areas where the intent is unclear or could be better defined?
7.Are there sections that are particularly helpful or not relevant?
8.Are there areas where the guide is too detailed or, conversely, where additional guidance would be helpful?
9.Are there any important issues, risks, or considerations relevant to enduring data linkage that are not adequately addressed in the guide?
10.Are there any barriers to implementation that should be considered?
11.Do you have any additional feedback on how the guide could be improved?
Thank you for your contribution. Your feedback will help refine and strengthen the Guide.