Health and Research Experiences of Adults with Cerebral Palsy

Demographics

The purpose of this survey is to learn about the health and research experiences of adults with CP. This survey is a part of the PCORI-funded project entitled Supporting engagement in patient-centered comparative clinical effectiveness research among adults with cerebral palsy. Results from this survey will be used to inform the development and delivery of a curriculum designed to increase health literacy and research engagement in the adult CP community.

Below is a glossary of terms used throughout the survey. Please reference if you are unsure about a term or concept.
Frequently Used Terms

Question Title

* 1. Are you:

An adult with cerebral palsy

The parent/guardian of a dependent adult with cerebral palsy

Other (please specify)

Question Title

* 2. How old are you?

18–24

25–34

35–44

45–54

55–64

65 or older

Question Title

* 3. What is your gender?

Female

Male

Nonbinary

Prefer not to say

Prefer to self describe

Question Title

* 4. Where you live?

In the United States

Outside of the United States