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Health and Research Experiences of Adults with Cerebral Palsy
Demographics
The purpose of this survey is to learn about the health and research experiences of adults with CP. This survey is a part of the PCORI-funded project entitled
Supporting engagement in patient-centered comparative clinical effectiveness research among adults with cerebral palsy.
Results from this survey will be used to inform the development and delivery of a curriculum designed to increase health literacy and research engagement in the adult CP community.
Below is a glossary of terms used throughout the survey. Please reference if you are unsure about a term or concept.
Frequently Used Terms
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1.
Are you:
(Required.)
An adult with cerebral palsy
The parent/guardian of a dependent adult with cerebral palsy
Other (please specify)
*
2.
How old are you?
(Required.)
18–24
25–34
35–44
45–54
55–64
65 or older
*
3.
What is your gender?
(Required.)
Female
Male
Nonbinary
Prefer not to say
Prefer to self describe
*
4.
Where you live?
(Required.)
In the United States
Outside of the United States
