Consultation on the Draft Health information Policy Framework - Your Opinion Matters

This public consultation is being carried out to help the Department of Health to develop a national health information policy.  The purpose of this consultation is to seek your views on the proposals to inform the drafting of a national health information policy in 2018.

We would like to find out what people think about how personal health information is collected, used and shared in our health services – what is working well and what needs to be improved.  We would also like to hear the public’s views on what future health information policy should look like and are particularly keen to hear from patients, healthcare professionals, health service providers and health researchers. However, everyone with an interest, including regulators, advocacy groups and representative organisations is welcome to participate.  

This consultation is focused on the processing of personal health information in healthcare and health-related settings.

Closing date
The consultation process will run for a period of 6 weeks and the closing date for submitting your views is close of business on Wednesday 15th November 2017.

Data Protection and Privacy Provisions
The information shared by you in this consultation will be used solely for the purposes of policy development and handled in accordance with data protection legislation.  An analysis of submissions received as part of the public consultation will be published online which will include a list of organisations and representative bodies that responded. Comments submitted by individuals may be used in the final consultation report but these will be anonymised.  All personal data is securely stored and subject to data protection laws and policies.  For more information, see http://health.gov.ie/data-protection/. Please note that submissions received by the Department are subject to the Freedom of Information (FOI) Act 2014 and may be released in response to an FOI request. All submissions received will be subject to the Freedom of Information Act (2014).By responding to the consultation, you acknowledge that you are aware that your responses may be released in response to a Freedom of Information request.

Structure of this Consultation Questionnaire

There are four sections in this online questionnaire:

Section 1 gives some background to health information in Ireland and internationally

Section 2 asks for some details about you

Section 3 outlines the core principles for processing personal health information in healthcare and health-related settings and seeks your views on the proposed principles.

Section 4 outlines the policy pillars underpinning the draft framework and seeks your views on the proposed pillars.

If you would like a paper copy of the consultation form sent to you or you have any questions about the document, please contact the Department of Health at:

Health Information Policy Framework Consultation

Room 7.24

Department of Health

Hawkins House

Hawkins Street

Dublin 2, D02 VW90

Phone: (01) 6354706

Email: health_information@health.gov.ie

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