HIV is a virus that attacks the immune system — the part of the body that fights off infections and illness. Without treatment, HIV can weaken the immune system over time until the body struggles to defend itself against diseases that a healthy immune system would normally handle. Antiretroviral therapy, or ART, is a daily medication that keeps HIV under control by stopping the virus from making copies of itself in the body. When someone takes their HIV medication consistently, the amount of virus in their blood drops to very low levels — this is measured by a test called a viral load. When the viral load becomes so low that standard tests cannot detect it, a person is said to be "undetectable," which means their treatment is working well and their immune system is protected. People who are undetectable and stay on their medication can live long, healthy lives — and cannot pass HIV on to their sexual partners.

We would like to understand your viewpoints on your treatment journey, challenges, and opportunities in how the health care system can better support you and your management of HIV.

This survey has seven pages and should take approximately 25 minutes to complete. Thank you so much for helping to shape the future of HIV treatment monitoring.

Instructions and notes:
  • This survey is completely voluntary and anonymous. Your answers will not affect your healthcare in any way.
  • Please answer all questions as honestly as you can — there are no right or wrong answers.
  • If a question doesn't apply to you, you may skip it. Some questions ask about your opinions and feelings.
  • If you have questions or feel uncomfortable at any point, please reach out to the contact listed.
Taking part in this survey is completely voluntary, and your answers are anonymous and confidential — we do not collect your name or any other information that could identify you. By choosing to answer the questions below, you confirm that you understand this and agree to take part.

This survey is led by Lara Vojnov (lvojnovdx@gmail.com), an independent consultant, Senior Scholar at Georgetown University, and former WHO Diagnostics Advisor, who has spent years working to make HIV treatment monitoring work better for people living with HIV. This work is part of broader efforts to inform an update to the WHO HIV treatment monitoring algorithm, of which understanding the values and preferences of people living with HIV is an essential component of the WHO guideline development process. The work is self-funded.

As more people thrive on once-daily treatment like TLD and stay virally suppressed, there is a real opportunity to rethink treatment monitoring — shifting care to where it's needed most. Your voice and experience are at the heart of this work, and what you share will help shape global guidelines that affect millions of people.
SECTION A: About You
These questions help us understand who is completing the survey. All responses are confidential.

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1. What is your age?

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2. What is your gender identity?

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3. What is the highest level of education you have completed?

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4. Where do you primarily live?

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5. How far do you travel to reach your usual HIV clinic or health facility?

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6. What is your country of origin?

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7. Would you identify as one of the following key populations?

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8. Are you currently pregnant or had a baby in the last year?

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