"Long-term" COVID-19 & light intervention: Participant Registration

Understanding this survey

The following information that you will supply has three purposes:

1.) To avoid administrative confusion when gathering data in other tests that you will be responding to.

These are part of the ongoing study at StudyLTCovid.com See details there.

2.) To compare results. Example: are results different for men and women? How about by age groups? Are larger or smaller people doing better or worse with “long-term” COVID-19? What about results after an intervention with light? You get the idea.

3.) To do 1 & 2 while respecting the privacy of the information that you chose to provide. It stays in our database and isn’t shared with anyone outside of the study, nor with other participants.

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* 1. Study ID#
For quickly finding your results ...
This has the following format:
QI-initials or pseudonym-Year of birth
For me, that looks like: QI-WJO-1950.
If I was in the Control Group, I’d add a “c” like this: QIc-WJO-1950

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* 2. Name, Initials, or Pseudonym

Whatever you chose, like William, or WJO, or Little Bill

Make it easy, to recall as needed for future use.

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* 3. Race / Ethnicity

White

Black or African American

Hispanic or Latino

Asian or Asian American

American Indian or Alaska Native

Native Hawaiian or other Pacific Islander

Another race

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* 4. What is your gender?

Female

Male

Other (specify)

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* 5. Enter your Date of Birth (dd/ mm/ yyyy)

Date / Time

Date

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* 6. Years of formal education (required by one of the subsequent tests to compare your results with norms):

Less than 12 years

12 years or more

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* 7. The following 6 pertain to body size and composition since COVID-19 and “long-term” COVID-19 are clearly related to this variable.

Height in cm. (If you know your height in inches, multiply it by 2.54, like this:
65 inches x 2.54 = 165.1 cm)

Weight this day in Kg
(If you know your weight in pounds, divide that by 2.2, like this:
138 pounds / 2.2 = 62.7 Kg)

(If you know your weight in stone weight, divide that by 6.35, like this:
398 stone / 6.35 = 62.7 Kg)

Percent Body Fat if you know it, else skip.

Do you have a soft or flexible tape measure? If not, skip these next 3. If so please enter the following in centimeters or inches (we’ll convert to cm).
- neck circumference [at Adam’s apple level]

- waist circumference [at level just above where rounded pelvis bones start on each side (typical pants belt level)]

- hip circumference [at the greater trochanters. Now where would that be? Usually at pants pocket level. Slide your fingers on the outside of your leg from waist to where you feel the top of your femur jut out a bit. That’s the greater trochanter].

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* 8. Dominant Hand

Right handed

Left handed

Quite completely ambidextrous

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* 9. Are you/ were you before becoming ill, an endurance athlete?

- yes, an endurance athlete

- exercised daily

- exercised some, at times

- no, not an athlete

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* 10. When discussing this study with you before, were you assigned to a Study Group? Select it below:

1.- Full 31 day study, including intervention with supplied light. (this is NOT the "Quick Impressions" subgroup).

2.- “Quick Impressions” protocol with 10 days of intervention with light (and presumed "long-term" COVID-19)

3.- "Quick Impressions" protocol with 10 days of intervention with light AND had COVID-19 by test but now asymptomatic (completely over it), so NOT a "long-term" COVID-19 subject.

4.- "Quick Impressions" protocol with 10 days of intervention with light BUT never had COVID-19 (by tests or symptoms). That's called a Negative Control group.

5 ."Quick Impressions" protocol with 10 days of intervention with light BUT never had COVID-19 (by tests or symptoms), AND also have a Chronic Illness (see below).

6. "Quick Impressions" protocol with 10 days of intervention with light AND had acute COVID-19 (by tests or symptoms), AND have a Chronic Illness (see below).

7. "Quick Impressions" protocol with 10 days of intervention with light AND believe I have "long-term" COVID-19 (by tests or symptoms), AND have a Chronic Illness (see below).

8.- “Quick Impressions” CONTROL protocol with NO intervention with light: does tests on Day 0 & Day 11 (explained on this page).

9.- Other group (for example, using light for some other indication like a nerve injury,
bone fracture, Parkinson’s Disease, etc., but no link to COVID-19): may still be asked to do some specific tests.

None of the above, (but please review again the above possible choices).

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* 11. If you are using the Red and Near-Infrared light supplied to you, what is the area of the body where that intervention will be applied?

- Head Only

- Head & Back

- No, not using the light at all.

- Some other area(s)

Other area(s): (please specify)

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* 12. We refer to the day when preliminary information like this is obtained as “Day 0.” Other surveys are also usually responded to on “Day 0” as has been explained or presented with links on our site. “Day 1” for starting the intervention usually follows the next day, but may be a day or two later.

So, what is your date for “Day 0”? (dd/mm/yyyy)

Date / Time

Date

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* 13. And what date for “Day 1,” the day when you actually start to do the intervention with light (or for 1st day in the Control Group)?

Date / Time

Date

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* 14. What follows pertains to this study of a viral illness.
- Have you had a test for the SARS-CoV-2 virus (Y/N)?

Yes

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* 15. - Have you had a positive test (antigen or antibody) (Y/N)?

Yes

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* 16. - Are you currently asymptomatic (i.e., no apparent illness) (Y/N)?

Yes

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* 17. - Have you been vaccinated against this virus (Y/N)?

Yes

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* 18. - If yes, which vaccines? (can list like this: Astra-Zeneca x2, Pfizer x1, Moderna x1, for example). If not vaccinated leave blank.

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* 19. - Had a positive test recently for this virus? (Y/N) If so, when?

Yes

Enter date here for that positive test.

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* 20. Any other ongoing or chronic illness to mention at this time? Comment below or simply enter "None."

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* 21. This study is unlikely to generate any urgent findings that should be reported rapidly to participants. Nevertheless, staying in touch with participants and having that be possible in both directions is always a good idea.

We use ZOOM from time to time to communicate. That requires sending you an emailed invitation.

So from our end, reach us through:
Questions@StudyLTCovid.com and/ or +32 475 962408

Don’t hesitate to reach out with any questions or observations that you think should be heard, here below or using the above contact info.

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* 22. Your turn.

And if you feel uncomfortable about providing the following information, don’t. Skip it.

Country

Email Address

Phone Number

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* 23. Thanks again for your time and effort. Your responses will next be transferred to our primary database. It will greatly simplify transfer of your information to other databases (see the site to know which ones) as the study proceeds. One click beats typing over and over, the same information.

If you'd like a bit more information about the background information and results that lead to our ongoing study at StudyLTCovid.com, have a look at LTCOVID.com to understand how and why we moved in 2020 towards an intervention with light (photobiomodulation) for those still suffering with "long-term" COVID-19.

William O’Neill, MD

PS: Remember to click the button below to avoid losing your responses!

"Long-term" COVID-19 & light intervention: Participant Registration

Understanding this survey

Question Title

* 1. Study ID#For quickly finding your results ...This has the following format:QI-initials or pseudonym-Year of birthFor me, that looks like: QI-WJO-1950.If I was in the Control Group, I’d add a “c” like this: QIc-WJO-1950

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* 2. Name, Initials, or PseudonymWhatever you chose, like William, or WJO, or Little BillMake it easy, to recall as needed for future use.

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* 3. Race / Ethnicity

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* 4. What is your gender?

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* 5. Enter your Date of Birth (dd/ mm/ yyyy)

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* 6. Years of formal education (required by one of the subsequent tests to compare your results with norms):

Question Title

* 7. The following 6 pertain to body size and composition since COVID-19 and “long-term” COVID-19 are clearly related to this variable.

Question Title

* 8. Dominant Hand

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* 9. Are you/ were you before becoming ill, an endurance athlete?

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* 10. When discussing this study with you before, were you assigned to a Study Group? Select it below:

Question Title

* 11. If you are using the Red and Near-Infrared light supplied to you, what is the area of the body where that intervention will be applied?

Question Title

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* 13. And what date for “Day 1,” the day when you actually start to do the intervention with light (or for 1st day in the Control Group)?

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* 14. What follows pertains to this study of a viral illness.- Have you had a test for the SARS-CoV-2 virus (Y/N)?

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* 15. - Have you had a positive test (antigen or antibody) (Y/N)?

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* 16. - Are you currently asymptomatic (i.e., no apparent illness) (Y/N)?

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* 17. - Have you been vaccinated against this virus (Y/N)?

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* 18. - If yes, which vaccines? (can list like this: Astra-Zeneca x2, Pfizer x1, Moderna x1, for example). If not vaccinated leave blank.

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* 19. - Had a positive test recently for this virus? (Y/N) If so, when?

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* 20. Any other ongoing or chronic illness to mention at this time? Comment below or simply enter "None."

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* 22. Your turn.And if you feel uncomfortable about providing the following information, don’t. Skip it.

Question Title

* 1. Study ID#
For quickly finding your results ...
This has the following format:
QI-initials or pseudonym-Year of birth
For me, that looks like: QI-WJO-1950.
If I was in the Control Group, I’d add a “c” like this: QIc-WJO-1950

* 2. Name, Initials, or Pseudonym

Whatever you chose, like William, or WJO, or Little Bill

Make it easy, to recall as needed for future use.

* 14. What follows pertains to this study of a viral illness.
- Have you had a test for the SARS-CoV-2 virus (Y/N)?

* 22. Your turn.

And if you feel uncomfortable about providing the following information, don’t. Skip it.