Data Repository- Older Adult Consent, Demographics & Baseline Survey

* 1. What will participation look like?
Participation includes an interview and 1 -3 brief surveys. The survey will take approximately 15-30 minutes to complete and the interview could take 30-90 minutes. We may also ask you to complete a brief feedback survey to evaluate the final database we create. The feedback survey will be sent 3-6 months after your interview.

Is my feedback confidential?
We will be collecting feedback from you about the data and resources we find and create. Additionally, we will ask a few questions about your background, such as your age, location, and any relevant information. All this information is kept confidential by the CIRA research team. Your decision to participate in this study is voluntary and you can decide to leave the study at any time. You do not have to answer any questions that you are uncomfortable with. You can have your personal information removed from the study if you decide to drop out. The focus groups will be audio recorded and transcribed, but the researchers will remove any personally identifiable information and your name will not be associated with any of the content. After the study period, the transcripts and recordings will be deleted. If the researchers would like to use your feedback in new training materials, they will ask your permission.

What are the risks and benefits?
This is a low-risk study. We hope the Older Person's Human Rights Indicator Framework (OPRIF) will be beneficial in terms of programs and policies on health, social, and legal factors for older adults. The information and data collected from interviews and surveys will be used to improve and update the database. Additionally, this data may be published in academic papers, included in reports, or presented at conferences to share our findings and help others understand and address the basic human rights issues for older adults. Participants will not be directly identified in any research presentation. All data will be stored for seven years then permanently deleted. When it is time to destroy the data, electronic data will be permanently deleted.

Interview and survey platforms security and data protection
Microsoft Teams ensures data security with encryption at rest and in transit. Teams complies with various industry standards such as HIPAA, and it provides robust access controls and permissions management to safeguard user data and communications. SurveyMonkey uses encryption to protect data in transit and at rest. It can anonymize responses, ensuring respondent privacy. SurveyMonkey complies with international data protection regulations, ensuring high standards of data privacy and security. OtterAI transcription service will be used to transcribe the interviews. Otter utilizes best practices to protect customers’ data and works with independent experts to verify its security measures, and has achieved SOC 2 Type 2 report, which certifies their controls to ensure the continuous security of customers' data.

Disclaimer:
The spirit of this study is to help us reflect on the state of human rights of older adults by shining a light on some of the ‘blind spots’ that we sometimes have but in a lighthearted and thought-provoking manner. Sometimes, being interviewed about the basic rights for older adults can make people feel uncomfortable or upset because it might show where problems or unfair treatment exist. This project is not meant to critique work that is being done to cater for older adults, nor is it meant to make light of or disempower older adults. Further, it is not meant to blame anyone but to help us see where we can improve and make things better for older adults.