OPWSA is excited to announce that we have been approved for funding for a program to offer respite opportunities to families and caregivers who support individuals with PWS. We are calling this program The Adventure Project: Recreation and Respite for Prader-Willi Syndrome Families. The Adventure Project: Recreation and Respite for Prader-Willi Syndrome Families is supported by the Government of Canada's Emergency Community Support Fund and Toronto Foundation.

In order to be eligible to receive the funding, the individual with PWS must live in Ontario.

We are asking interested families to submit a proposal on how they are planning on using the funds if their proposal were to be accepted. The funding should be used to hire respite workers, and/or for respite programs or activities for the individual with PWS to be engaged in outside of the house. Given the situation with COVID-19, we are aware that families might not feel comfortable with hiring respite workers, so funding could also be used for a family member or friend to do an activity with the individual with PWS (for example, a trip to the zoo).

Please note that there are limited funds, so we may not be able to accept all proposals. Accepted proposals will be eligible to receive up to $500 worth of funding. We are accepting proposals between now and February 28th. You will receive notification on whether your proposal has been accepted within 1 week of submitting your proposal. Funds must be used by March 31st, 2021.

OPWSA will reimburse you by cheque for the accepted funding amount AFTER you have used all of the allocated funds and submitted the required report, receipts and paperwork.

If you have any questions, please contact Jennifer Coens, OPWSA Executive Director at ontariopws@gmail.com.

Question Title

* Before submitting a proposal, you must agree and understand that:
  • The individual with PWS you're applying for lives in Ontario.
  • The funding will be used to hire respite workers, and/or for respite programs or activities for the individual with PWS to be engaged in outside of the house.
  • The funding must be used before midnight on March 31, 2021.
  • I will submit a brief Report on Funding and provide any photos that showcase how the funding was used.
  • I must keep track of my receipts, invoices, etc., and will submit them to OPWSA along with the Report on Funding once all of the funding has been used.
  • The Report on Funding, invoices, and receipts must be submitted to OPWSA by April 2, 2021 at the latest.
  • OPWSA will reimburse me within one month of receiving my Report on Funding, receipts, invoices, etc.
  • OPWSA is allowed to use any testimonials for education, marketing, or fundraising purposes.