Autoimmune Liver Disease in Europe - Patient Survey

EASL - Lancet commission Patient survey Europe

Health care professionals and patient groups are working together to find out more about the experience of patients with autoimmune liver conditions across Europe.

The results of this survey will be used by EASL (The European Association for the Study of the Liver) and by RARE Liver ERN – the European Reference Network for Rare Liver Disease to help improve standards of care for rare liver disease patients and attitudes towards liver disease.

The survey is anonymous and your help is greatly appreciated.

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* 1. What is your liver disease diagnosis?

Autoimmune hepatitis (AIH)

Primary biliary cholangitis (PBC)

Primary sclerosing cholangitis (PSC)

AIH/PBC

AIH/PSC

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* 2. Where do you live (country)?

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* 3. Approximately how long did it take to diagnose your liver disease ?

1-3 months

4-6 months

6-12 months

13-24 months

Over 2 years

Can't remember

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* 4. Do other people believe your liver disease is associated with alcohol use?

Yes