Exit What Are Your Needs as a ME/CFS/Long COVID Caregiver? As a family caregiver, you matter too. Please take this 10-minute survey on the top needs & concerns of caregivers of loved ones with ME/CFS/Long COVID and related illnesses. I appreciate your taking the time! If you have any questions or feedback, please reach out to me at kim.mecfs@gmail.com. Thanks! Question Title * 1. What illness(es) does your loved one have? Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Long COVID Fibromyalgia POTS Chronic Lyme disease Chronic pain Other (please specify) Question Title * 2. Who are you caring for? Spouse / partner Juvenile child Adult child Parent Friend Other (please specify) Question Title * 3. What is the age of your loved one with the illness(es)? 17 or younger 18-24 25-34 35-44 45-54 55-64 65-74 75 or older Question Title * 4. How old was your loved one when the illness(es) began? 17 or younger 18-24 25-34 35-44 45-54 55-64 65-74 75 or older Question Title * 5. How long have you been on this caregiving journey? 1 year or less 2-3 years 4-9 years 10-19 years 20+ years Question Title * 6. Are you the sole caregiver or do you share caregiving responsibilities with others? I am the sole caregiver I share caregiving responsibilities with other family members I share caregiving responsibilities with friends Other (please explain) Question Title * 7. Are you working a job in addition to caregiving? Yes, I work a full-time paid job Yes, I work a part-time job No, I am a full-time caregiver No, I am retired Other (please explain) Question Title * 8. How would you describe your current emotional state as a caregiver on a scale of 1-5? 1 is thriving and 5 is burnt out. 1: Thriving 2: Managing life at an even keel 3. Surviving 4. Overwhelmed, and barely hanging on 5. Totally burnt out Question Title * 9. What are your biggest caregiving problems? (Please rank in order of top priority.) Question Title * 10. What type of help and support do you need? (Pick all that apply) Information and advice tailored for ME/CFS/Long COVID caregivers News on ME/CFS/Long COVID research and treatments Community support from fellow caregivers (e.g. online forums, support groups) Training/webinars on topics relevant to chronic illness caregiving (e.g. your emotional health, spiritual health, physical health, caregiving tips, accessibility and accommodations, household operations, financial & legal issues, etc.) One-on-one coaching on topics relevant to chronic illness caregiving (e.g. to discuss your individual situation and achieve your personal goals) Finding local resources (e.g. list of agencies and groups in your state or county) Advocacy (e.g. how to contact your elected officials to increase ME/CFS/Long COVID research funding) Other (please specify) Question Title * 11. What caregiving topics are you most interested in learning about? (Please rank in order of top priority) Question Title * 12. Are there topics that you could help other caregivers learn about? If so, please tell us what topics, your name, and contact info. (See the above ideas and feel free to add other topics). Question Title * 13. Where do you get information, advice, news, and/or community connection for your caregiving role now? ME/CFS/Long COVID websites Caregiving websites Facebook groups Support groups (outside of Facebook) Podcasts Books Caregiving coach Other (please specify) Question Title * 14. Please list specific websites, support groups, Facebook Groups, podcasts, books, coaches, or other helpful sources of info/support you currently use: Question Title * 15. Anything else you'd like to share about your caregiving needs? Question Title * 16. Do you use social media? If so, which ones and how often? Facebook daily Facebook a few times a week Facebook weekly Instagram daily Instagram a few times a week Instagram weekly I’m not on social media Other social media platforms (please specify which and how often you use them) Question Title * 17. What is your gender? Female Male Other Prefer not to say Question Title * 18. What is your age? 17 or younger 18-24 25-34 35-44 45-54 55-64 65-74 75 or above Question Title * 19. Which race or ethnicity best describes you? White Black or African American Hispanic or Latino Asian or Asian American American Indian or Alaska Native Native Hawaiian or other Pacific Islander Other (please specify) Question Title * 20. What is your education level? Master's degree or above Bachelor's degree High school I prefer not to say Other (please specify) Question Title * 21. Where are you located? Australia Canada India South Africa United Kingdom United States Other (please specify) Question Title * 22. Please leave your name and contact info if you'd like to be contacted for future caregiver support offerings. Name City/Town State/Province -- select state -- AL AlabamaAK AlaskaAS American SamoaAZ ArizonaAR ArkansasCA CaliforniaCO ColoradoCT ConnecticutDE DelawareDC District of ColumbiaFM Federated States of MicronesiaFL FloridaGA GeorgiaGU GuamHI HawaiiID IdahoIL IllinoisIN IndianaIA IowaKS KansasKY KentuckyLA LouisianaME MaineMH Marshall IslandsMD MarylandMA MassachusettsMI MichiganMN MinnesotaMS MississippiMO MissouriMT MontanaNE NebraskaNV NevadaNH New HampshireNJ New JerseyNM New MexicoNY New YorkNC North CarolinaND North DakotaMP Northern Mariana IslandsOH OhioOK OklahomaOR OregonPW PalauPA PennsylvaniaPR Puerto RicoRI Rhode IslandSC South CarolinaSD South DakotaTN TennesseeTX TexasUT UtahVT VermontVI Virgin IslandsVA VirginiaWA WashingtonWV West VirginiaWI WisconsinWY Wyoming Country Email Address Done