In the summer of 2026, UMDF launched a new strategic plan – our roadmap for the next three years to fund transformational research, accelerate diagnosis and expand access to quality care and emerging therapies, deepen collaboration across the mitochondrial disease community, and build broader awareness and understanding of this disease.
Your perspective in this survey – which we intend to make an annual touchpoint – helps us see clearly where we're making progress toward that plan, and where we still have work to do.
Unless a question specifies otherwise, please answer based on your experience over the past 12 months.
Since this is the first year we are conducting this survey, your responses will establish our baseline for tracking progress in future years.
Your individual responses will remain confidential – only de-identified, aggregated findings will be shared publicly or used in reporting. While we would appreciate responses to all questions, you may skip any question you would prefer not to answer.
Thank you for participating.
If you have feedback regarding, this survey -- please email UMDF.
