2018 Caregivers Survey - National Initiative for Eating Disorders (NIED)

Thank you for taking the time to participate in this survey. This survey contains 24 questions and may take you about 30 minutes to complete.

Your responses will help NIED and its partners
  1. better understand the needs of people who support and care for people living with Eating Disorders in Canada; and
  2. propose better ways of organizing health care systems and social services to respond to the needs of caregivers.
Who should participate in this survey

People (such as friends, family members or formal caregivers) who provide support or care to a person who has recovered from an Eating Disorder or is living with or recovering from an Eating Disorder.


In late 2016 and early 2017, the Government of Canada concluded 10-year funding agreements totaling $11.5 billion with provinces and territories to specifically improve home care and mental health initiatives across Canada.  This new public money is in addition to the estimated $169 billion invested on health in 2017 by federal, provincial and territorial governments.

Purpose of Survey

The National Initiative for Eating Disorders (NIED) is working with organizations and people (e.g. caregivers, those with lived experience, professionals, clinicians and other stakeholders) to improve health and social outcomes of all those affected by Eating Disorders.

Through this survey, NIED seeks to add caregivers’ insights to existing evidence regarding the social and economic impact of caring for a person affected by an Eating Disorder.  These impacts include, but are not limited to, emotional stress, poor health, financial distress, periodic employment, and marital and/or other relationship breakdowns.

Your insights will help NIED and its partners increase governments’ awareness about the impacts of Eating Disorders on Canadians and help strengthen existing social support programs (such as home care, community care and mental health services) for caregivers of people affected by Eating Disorders. 

Drawing on existing programs from Canada and other jurisdictions, we know that it is possible to design universal programs that are accessible to all Canadians who may have to take time off work to care for a loved one.

How NIED will use the information gathered from this survey

NIED works with stakeholders to improve care and services for people affected by Eating Disorders.

NIED will group answers from this survey by province and territory and use insights gained from caregivers to develop a better understanding about what is working well and what may need improvement in health care systems and social services across Canada. 

Your privacy is important to us.

We are truly grateful to all participants for sharing their personal stories with us.  By participating in this anonymous online survey, NIED has no way of identifying who you are. 

Given that we are interested in improving care and outcomes in health and social systems across Canada, we kindly ask you to indicate where you live so that we can develop appropriate recommendations to decision-makers in your community, health region, province or territory.  To protect your privacy and the privacy of others, we kindly ask you to not share information such as your name, other people’s names, addresses, phone numbers, email addresses, health identification numbers or health provider names in your responses.  In the event that personal information such as this is submitted by participants to this survey, NIED will mask this information before analyzing results and delete any personal information.  Identifiable personal information will not be used in any publications produced by NIED based on the results of this survey.

Where do you live?

Question Title

* 1. Where do you live?

Do you live in a city, rural or remote location?

Question Title

* 2. Do you live in a city, rural or remote location?