LIVED Experience Survey

The purpose of this survey is to help us to better understand the strengths and challenges of the eating disorders healthcare system. 

Participants will include individuals who have personally experienced eating disorder symptoms and may or may not have received treatment or therapy in the eating disorders healthcare system. 

For the purpose of this survey, we define the eating disorders healthcare system as all services provided by healthcare professionals.  It does not include other supports delivered by non-clinical professionals. 

Your participation is voluntary and strictly confidential.  You will not be identified or identifiable.  Your responses will be combined with the responses from a minimum of 20 other individuals.  If less than 20 responses are received, the survey results will not be used and the completed surveys will be destroyed.  

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* 1. Overall, how would you rate your experience with the healthcare system in responding to your eating disorder and related healthcare needs?  (Please select one option that fits best)

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* 2. How would you describe your experience in receiving an accurate diagnosis of your eating disorder?  (Please select one option that fits best) 

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* 3. Please explain why you have not received a formal diagnosis.

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* 4. What was the length of time between your initial discussion with a health care professional about your eating disorder symptoms and starting psychotherapy or other forms of treatment? ( Please select one option that fits best)

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* 5. What was your experience in finding appropriate psychotherapy or other clinical treatment to meet your needs? ( Please select one option that fits best) 

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* 6. Were you able to access therapy or treatment in the publicly funded system?  i.e. OHIP? Please select one option that fits best)

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* 7. If you were unable to access publicly funded treatment, please explain here.

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* 8. In your opinion, how successful was your therapy or treatment in responding to your eating disorder? (Please select one option that fits best)

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* 9. If you attended a  hospital inpatient or day program, what would you consider to be the strengths of the program?  ( Please select all that apply)

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* 10. If you attended a hospital inpatient or day program, what would you consider to be the limitations or weaknesses of the program?  (Please select all that apply)

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* 11. If you attended a hospital inpatient or day program, did you receive adequate follow-up and monitoring of your progress post treatment

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* 12. If treatment was not successful, please describe in your own words why.

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* 13. If you attended publicly funded or free outpatient treatment in the community, what would you consider to be the strengths of the therapy or treatment you received?  ( Please select all that apply)

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* 14. If you attended publicly funded or free outpatient treatment in the community, what would you consider to be the limitations or weaknesses of the therapy or treatment you received?   ( Please select all that apply)

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* 15. If you attended a private inpatient residential clinic, what would you consider to be the strengths of the program?  (Please select all that apply)

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* 16. If you attended a private inpatient residential clinic, what would you consider to be the limitations or weaknesses of the program?  ( Please select all that apply)

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* 17. If you received residential private treatment,  where was the facility located?

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* 18. If you attended private outpatient treatment in the community, what would you consider to be the strengths of the therapy or treatment you received?
(Please select all that apply)

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* 19. If you attended private outpatient treatment in the community, what would you consider to be the limitations or weaknesses of the treatment you received? ( Please select all that apply)

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* 20. If you experienced individual psychotherapy online as a result of the Covid-19 pandemic, in your opinion, how effective was online vs. in-person therapy

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* 21. What do you see as the most urgent need or top priority for improving the treatment and supports available for people with eating disorders?
Please share any feedback or ideas that you might find helpful. 

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* 22. What is your age?

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* 23. At what age did symptoms of disordered eating start? 

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* 24. What is your gender?

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* 25. Please provide the name of the city/town and province where you currently reside?

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* 26. Please share any other feedback or ideas that you think might be helpful:

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