2026 NBDF Community Needs Assessment

Intro & Core Questions

NBDF is so grateful for your participation in this survey as it will advance our partnerships and offerings. The 2026 Community Needs Assessment is an essential measure of the past, current, and future landscape of the bleeding disorders community. The survey is anonymous, unless you choose to share your contact information.

This survey will take approximately 15—30 minutes to complete but may vary slightly depending on your responses, so we ask that you set aside some uninterrupted time to do so. Please complete the survey by October 30th, 2026.

We appreciate your participation. We are thankful for taking the time to share your thoughts with us. We rely on the experiences of the bleeding disorders community to guide us today and into the future. Thank you!

Note: In this section the term 'loved one(s)' refers to family and/or friends

Question Title

1. Which of the following best describes your connection to the bleeding disorders community? Select all that apply. (Required.)

Person with a bleeding disorder

Parent/caregiver of a person with a bleeding disorder

Family member of a person with a bleeding disorder

Friend of a person with a bleeding disorder

NBDF board member

NBDF affiliated Chapter board member/volunteer

NBDF affiliated Chapter staff

NBDF national Chapter staff

NBDF national Chapter volunteer

Unaffiliated organization staff

Unaffiliated organization volunteer

Government staff

Health care provider

Pharmaceutical industry partner

Specialty pharmacy

Researcher

Policymaker

Public health professional

Donor/funder

Volunteer

Other (please describe)

Question Title

2. Which bleeding disorder do you and/or your loved one(s) have? Select all that apply. (Required.)

Von Willebrand Disease

Factor II (2) deficiency

Factor V (5) deficiency

Factor VII (7) deficiency

Factor VIII (8) deficiency (Hemophilia A)

Factor IX (9) deficiency (Hemophilia B)

Factor VIII (8) deficiency (Hemophilia A) with an active inhibitor

Factor IX (9) deficiency (Hemophilia B) with an active inhibitor

Factor VIII (8) deficiency (Hemophilia A) with a tolerized inhibitor

Factor IX (9) deficiency (Hemophilia B) with a tolerized inhibitor

Factor X (10) deficiency

Factor XI (11) deficiency

Factor XII (12) deficiency

Factor XIII (13) deficiency

Platelet Disorder

Glanzmann Thrombasthenia

Carrier Hemophilia A

Carrier Hemophilia B

Symptomatic Carrier Hemophilia A

Symptomatic Carrier Hemophilia B

Acquired Bleeding Disorder

Not applicable

Other (please describe)

Question Title

3. Gender identity (Required.)

Man

Woman

Prefer not to disclose

Prefer to describe

Question Title

4. Racial/Ethnic background (Required.)

American Indian or Alaska Native

Asian

Black or African American

Hispanic or Latino

Middle Eastern or North African

Native Hawaiian or Pacific Islander

White

Other (please describe)

Question Title

5. Do you speak any other language(s) aside from English? (Required.)

Yes

6% of survey complete.

2026 NBDF Community Needs Assessment

Intro & Core Questions

Question Title

* 1. Which of the following best describes your connection to the bleeding disorders community? Select all that apply. (Required.)

Question Title

* 2. Which bleeding disorder do you and/or your loved one(s) have? Select all that apply. (Required.)

Question Title

* 3. Gender identity (Required.)

Question Title

* 4. Racial/Ethnic background (Required.)

Question Title

* 5. Do you speak any other language(s) aside from English? (Required.)

1. Which of the following best describes your connection to the bleeding disorders community? Select all that apply. (Required.)

2. Which bleeding disorder do you and/or your loved one(s) have? Select all that apply. (Required.)

3. Gender identity (Required.)

4. Racial/Ethnic background (Required.)

5. Do you speak any other language(s) aside from English? (Required.)