11% of survey complete.
One of the most common concerns we hear from fellow Ehlers-Danlos Syndrome (EDS) sufferers is that their sleep is being affected by their illness.

By participating in this survey, you are helping EDS sufferers everywhere. The data collected will be analyzed and included in our upcoming report in which we will address the issue from many different angles. Your participation will help us to educate patients, families, and healthcare providers.

By completing this survey, you will automatically be entered into a DRAWING TO WIN a flip-syle video camera. Only one entry per person. You must have an EDS diagnosis to take the survey. Please provide your email address at the end of the survey, so that we can contact the winner. We will also email you the survey results when it is complete.

Thank you for your time and input which will help us increase EDS awareness! To ask questions or learn more about EDS, visit

Question Title

1. By choosing "I agree" below, you acknowledge that you are legally able to consent and that doing so will not cause you harm. This survey is voluntary - you acknowledge that you choose to participate in our examination of how Ehlers-Danlos Syndrome (EDS) affects sleep. You give permission for the data you submit to be used by and its affiliates without limitation or further consent except where prohibited by law or expressly stated. respects your privacy and will not share your name or email address with affiliates, nor will this information be used in publications or presentations.

You acknowledge that you have been officially or unofficially diagnosed with EDS. You agree to answer the survey questions honestly in order to preserve the integrity of our research. You further certify that this is the only time you have and will submit answers to this survey. You agree to contact us prior to submitting your responses, if you have questions or concerns about the survey.

Please note... you may take this survey on behalf of a minor child who has been diagnosed with EDS. Please involve the child in answering the questions whenever possible as s/he may provide information that is different from what you would have initially provided.

Are you ready to help us improve EDS awareness?