We are creating new resources for people with MS and their supporters, and we need your input. We would love to hear your thoughts on what's missing, what needs updating, and how we can better provide information for New Zealanders living with MS.

Please take some time to answer these questions providing as much detail as possible. Your comments will only be seen by MSNZ staff members. You can view our privacy policy here. Your answers can be provided anonymously. 

If you'd prefer to talk, please email: helen@msnz.org.nz with your contact details. 

These are the resources we are updating - you may want to refer back to this list as you answer the questions.

Information Series:
- Beginner’s Guide to Multiple Sclerosis
- MS and Fatigue
- MS and Your Emotions
- MS and Your Bladder and Bowel
- MS and Visual Problems
- MS and Spasticity
- MS and Sexuality and Intimacy
- MS and Speech and Swallowing
- MS and Pain
- MS and Changes to Thinking and Memory

You can view the Information Series booklets online here. 

Knowledge is Power series:
- Dealing with your diagnosis
- Disclosing your diagnosis
- Managing your MS
- Disease modifying drugs for MS
- Working with your doctor
- The impact of MS on your family
- Maximising your employment options
- Building and maintaining intimate relationships
- Parenting issues for people with MS

Question Title

* 1. Do you use MSNZ resources to:

Question Title

* 2. When was the last time you read or referred to one of the MSNZ resources listed above?

Question Title

* 3. If you haven't used any MSNZ resources, why not?

Question Title

* 4. These are the topic currently offered by our information booklets.  Please grade them on how relevant each topic is to you and the person with MS you care for. 

  Not relevant Somewhat relevant Quite relevant Very relevant
Beginner’s Guide to Multiple Sclerosis
MS and Fatigue
MS and Your Emotions
MS and Your Bladder and Bowel
MS and Visual Problems
MS and Spasticity
MS and Sexuality and Intimacy
MS and Speech and Swallowing
MS and Pain
MS and Changes to Thinking and Memory

Question Title

* 5. These are the topics covered by our 'Knowledge is Power' series. Please grade each on how relevant it is to you and to the person with MS you care for.

  Not relevant Somewhat relevant Quite relevant Very relevant
Dealing with your diagnosis
Disclosing your diagnosis
Managing your MS
Disease modifying drugs for MS
Working with your doctor
The impact of MS on your family
Maximising your employment options
Building and maintaining intimate relationships
Parenting issues for people with MS

Question Title

* 6. Are there any topics that aren't covered in either of the above questions, but are important to you?

Question Title

* 7. In general, do you find the information provided by MSNZ provides:

Question Title

* 8. Are there any questions about MS, or about supporting someone with MS, that you've struggled to find answers to?

Question Title

* 9. How often to you refer to the MSNZ website?

Question Title

* 10. What could we change about the MSNZ website to make it more useful for you?

Question Title

* 11. Aside from MSNZ or your Regional MS Society, where do you get information about MS, or about caring for someone with MS?

Question Title

* 12. If we were to prepare a booklet specifically for carers, and one for family and friends of people with MS, what topics would you like to see covered?

Question Title

* 13. Would you like to read about the experiences of other MS carers?

Question Title

* 14. Would you be open to sharing your experience? If so, provide your contact details below, and someone from the MS Society will be in touch.

Question Title

* 15. Is there anything else you'd like to share with us about your experience with the MSNZ resources, or about caring for someone with MS?

0 of 15 answered
 

T