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Melanoma Research Foundation Educational Needs Assessment

Patient and Caregiver Survey

The Melanoma Research Foundation (MRF) is conducting a study to learn more about educational resources available to those who have been diagnosed with melanoma and their caregivers and providers. Thank you for being willing to share your thoughts. The survey will take approximately 10 minutes and your comments will be kept confidential. 

The survey will close on Friday, June 8, 2018. 
1.What state do you live in?
2.What is your gender?
3.Please indicate which of the following age groups you are in
4.What is the highest grade in school you completed?
5.What race/ethnicity best describes you?
6.Please describe how you have experienced melanoma. As a:
(Check all that apply)
7.Which type(s) of melanoma were you or your loved one diagnosed with?
(Check all that apply)
8.What is your stage?
9.When were you or your family member first diagnosed with melanoma?
10.Do you or did you typically receive treatment in your local community?
11.How far did you travel for treatment?
12.Where do you usually go for health information? (Check all that apply)
13.When seeking health information, what format do you prefer? (Check all that apply)
14.What is your primary source of melanoma information?
15.What information would be or would have been most helpful? (Check all that apply)
16.What types of information were you provided with upon your (or your loved one's) diagnosis? (Check all that apply)
17.Where did the melanoma information come from?
18.Ideally, when would you want to receive health information about melanoma?
19.What treatment information and options were discussed with you (or loved one) upon diagnosis? (Check all that apply)
20.Please rate your understanding of the following melanoma treatment options.
Do not understand well
Understand somewhat
Understand well
I'm not familiar with this treatment
Immunotherapies
Viral Oncolytic Therapies
Targeted Therapies
Adjuvant Therapies
21.Did your treatment team discuss the importance of reporting side effects immediately?
22.Do you feel comfortable calling your treatment team, anytime, to report a potential side effect?
23.When did your provider discuss clinical trial options with you?
24.Did you choose to participate in a clinical trial?
25.Why or why not?
26.Have you had biomarker testing?
27.What biomarkers have you been tested for? (Check all that apply)
28.Have you visited the Melanoma Reseach Foundation (MRF) website for health information? 
Current Progress,
0 of 32 answered