This survey builds on research work at the Department of Clinical Therapies and the Department of Psychology at the University of Limerick in collaboration with the University of Illinois, Urbana-Champaign, United States of America and the Multiple Sclerosis Society of Ireland. The vision of the research is to design and evaluate sustainable exercise interventions for people with Multiple Sclerosis (MS). By sustainable, we mean exercise that is suitable to be to be carried out by the person with MS in the medium and long term.
We are most grateful for your responses to the survey. If you have any queries, please do not hesitate to contact either Dr. Sara Hayes or Dr. Susan Coote:
• Dr. Sara Hayes (Tel: +353 61-234861, Email: firstname.lastname@example.org)
• Dr. Susan Coote (Tel: +353 61-234278, Email: email@example.com)
What is the background to this study and what does it hope to achieve?
There are an increasing number of studies that show that exercise has many beneficial effects for people with MS. However, we also know that people with MS are not as physically active as the general population. This survey will collect information regarding the factors that may be associated with physical activity levels among people with MS and therefore to help to inform future exercise programmes for people with MS.
What is the procedure involved?
You will be invited to complete an online survey. Completion of this survey will take around 30 minutes so it is important to take the time to fill it in completely.
Many of you will have completed this survey 6 months ago and now we would like to ask you the same questions- in order to see if your physical activity levels have changed and if so, why have they changed? In this way we will be able to track your physical activity level over time, in addition to other important details, such as mood, your confidence about exercising, how you plan your exercise sessions and set exercise goals for yourself. We are inviting people with MS who “fit into” all levels of physical activity to take part. However, for those of you who haven't completed this questionnaire- please do complete the current one- as we are very interested in getting as much information from as many people with MS as possible! So you do not have to be a physically active person to take part in this study. All information collected will be anonymous and participants’ records will be saved in password protected, limited access computer files. Access to the study data will be restricted to the researchers involved in the study only.
Who is being asked to take part?
People who are aged over 18 years, with a diagnosis of MS are invited to take part.
What are the benefits of taking part in this study?
There will be no immediate direct benefits to you as a result of participating in this study. However, future benefit includes the possibility of improving physiotherapy intervention for people with MS.
Are there any risks to me by taking part in this study?
There are no material risks, discomforts or side effects anticipated with the proposed study.
What happens to the information?
You will remain anonymous throughout this study. When we present the results, they will be averages and so you will not be able to be identified. We will let the MS Society know what the average results were, and will present them to physiotherapists and at other conferences. We hope to write research papers about the results also.
What happens if I change my mind during the study?
Your participation in this study is voluntary and you can withdraw from the project at any stage without giving any reason. If you withdraw it will not affect other treatment opportunities in any way.