Introduction:
You are being invited to take part in an online survey as part of research carried out by University College Cork. It should take 10-15 minutes to complete. Before you decide whether or not you wish to take part, you should read the information provided below carefully. You should clearly understand the risks and benefits of taking part in this study so that you can make a decision that is right for you. This process is known as ‘Informed Consent’. You don't have to take part in this study. Responses are anonymous so it will not be possible to opt out as your responses cannot be identified from other submissions.
Why is this study being done?
This study is being done to assess healthcare practitioners knowledge and use of patient reported outcome measures. Patient reported outcome measures (PROMs) are tools employed to quantify patient reported outcomes, most commonly through the means of self-reported questionnaire without interpretation by a healthcare practitioner. Digital biomarkers are investigational measures of disease activity using data derived from wearable devices, phone applications, and other digital technologies. We are looking to review healthcare practitioners knowledge of and use of PROMs in clinical practice and the research setting as well as their attitudes towards devices and digital biomarkers.
Who is organising the study?
This study is being sponsored by University College Cork and is being carried out by researchers from the Department of Medicine and Health University College Cork.
How will the study be carried out?
An anonymous online survey will be used to record responses. There are no direct benefits to taking part in the survey. The survey is entirely anonymous so any data submitted will not be linked to you. It will not cost you anything to take part in the study. The data from the survey will be stored on a password protected file on a university computer and will be kept for 5 years. The results of this survey are anonymous and will be presented to relevant stakeholders in an aggregated manner.
Who has reviewed the study?
All patient focused research in Ireland is reviewed by an independent group of people called a Research Ethics Committee, to protect your interests. This study has been reviewed and given favourable opinion by Clinical Research Ethics Committee of the Cork Teaching Hospitals. The REC can be contacted no: 021-4901901, email: crec@ucc.ie.
Where can I get more information
If you need any further information about the study now or in the future, please contact: c.cowhig@umail.ucc.ie more contact details for study team are in the participant information leaflet below.