Participant Information

Monitoring the effect of the NDIS on Australian Carers of Individuals with a Disability

Thank you for your participation in this research project. With the Australia-wide roll out of the National Disability Insurance Scheme (NDIS) moving forward, it is important that we continue to monitor its effects on the personal well-being and quality of life of carers. This will enable us to inform future policy of the National Disability Insurance Agency (NDIA) as to how the NDIS effects this important group.

The aims of this research are to:

1. Describe the personal well-being of Australian carers of individuals with a disability prior to, during, and after the NDIS roll-out.
2. Describe the personal well-being and NDIS-related experience of Australian carers of individuals with a disability and measure carer profile changes over a one year period.
3. Determine if these profiles differ depending on the type of disability. 
4. Gather essential data to inform the NDIA specifically about the experiences of Australian parents and carers of individuals with a disability.

Participant’s requirements

You will be asked to answer an online questionnaire about your age, gender, marital status, number of individuals you care for, the NDIS, etc. After completion of the questionnaire there are also 4 online measures. The measures will assess personal well-being (The Personal Well-being Index - PWI), emotional state (Depression Anxiety and Stress scale – DASS), care giver strain (the Care Giver Strain Questionnaire - CGSQ) and the quality of life as a care giver (Caregiver Quality of Life instrument – CGQoL). You will also be asked about continuing your participation in this vital research.

Privacy and Confidentiality

Your data will be de-identified to protect your privacy and confidentiality. Participation is voluntary and completion of the survey will imply consent.

Withdrawal of participation

You can withdraw your consent at any time and all data obtained up until that point will be deleted. You can simply withdraw from participation by closing your web browser to exit the survey or by contacting the investigators.

Researchers Contact Details

Matthew Snow (BPsych Hons)
Doctoral Candidate / Psychology,
School of Health and Human Sciences
Southern Cross University (SCU),
Coffs Harbour,
Ph: 02 6659 8038
Email –

Dr James Donnelly
Lecturer / Psychology
School of Health and Human Sciences
Southern Cross University (SCU)
Coffs Harbour, NSW 2450
Ph: 02 6659 3996
Email -

Ethical Clearance

Southern Cross University Human Research Ethics Sub-Committee Approval Number: ECN-15-192

Southern Cross University Ethics Complaints Policy

To report a complaint about the ethical conduct of the research or the researchers to the Ethics Complaints Officer the details are:
Ethics Complaints Officer
Human research Ethics Committee
Southern Cross University
PO Box 157, Lismore, NSW, 2480.
Email -