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Review of support and information needs in people diagnosed with breast cancer

Dear Participant,

Thank you for agreeing to take part in this survey as a part of a collaboration between Synthesis Clinic and NCIO (National Centre for Integrative Oncology). We really appreciate your time, support and contribution to this work. The full project name is 'Exploring unmet needs in people with solid tumours and the impact of integrative oncology: a mixed methods study', and this survey has received ethics committee approval with ref SYN30525. Further information on the study can be found HERE.

We are interested in understanding the holistic needs of people diagnosed with breast cancer and how these needs are met in standard oncological/hospital care. The collated anonymised survey results are planned for presentation and where appropriate, publication, to help the oncology community further understand and plan for needs of patients impacted by breast cancer.

Please choose the answer that most accurately reflects your experience PRIOR to and/or OUTSIDE OF seeking any additional support, purely within your usual oncological care setting.

Please answer each question as carefully and as honestly as you can. All responses are confidential.

Study consent statement:
My participation in this study is voluntary and I understand that I can withdraw from the study at any point without giving a reason. I have read the information provided, and I understand what is expected of me.
I have been given the opportunity to ask questions, and they have been answered to my satisfaction.
I understand what data will be collected about me, how it will be used and kept and who it will be shared with. I understand that the data collected from me will be securely kept in de-identified form and will be used for publications and presentations with the opportunity to be re-used by others.

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* 1. What is your age?

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* 2. Which race/ethnicity best describes you? (Please choose only one.)

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* 3. What is the highest level of school you have completed or the highest degree you have received?

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* 4. Which of the following categories best describes your employment status?

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* 5. What is/was your breast cancer diagnosis?

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* 6. What is/was your breast cancer stage?

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* 7. I was given information on how to manage my illness and side effects by my medical team

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* 8. My oncology team explained the nature of the tests and the results

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* 9. I was given information about what I can do to reduce the side effects of treatments

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* 10. My team discussed the menopausal symptoms I would experience because of my cancer treatment and how to manage them

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* 11. My team discussed sleep with me and provided sleep advice or support.

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* 12. I could discuss my fears and worries with my medical team

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* 13. I was equipped with useful advice and information about nutrition and diet

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* 14. My medical team discussed the importance of exercise throughout my treatment and beyond

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* 15. I was told I could have access to professional psychological help (counselling, social worker, nurse) if I needed it

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* 16. I was given information about the impact of cancer and treatments on my sexual health and options for support

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* 17. I felt as if I was treated as a person and not just my cancer

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* 18. I had a nurse or contact at hospital with whom I could easily discuss my condition, treatment effects and follow-up

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* 19. My medical team were sensitive to my feelings and my emotional needs

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* 20. I was given options to take part in mental and physical well-being programmes

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* 21. My team empowered me and made me feel that I had agency in my treatment journey.

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* 22. My medical team asked about my support network and offered support options for my carers/family/dependants

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* 23. My medical team signposted me to the places I could receive the support I needed

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* 24. If you have any other comments on your needs, please list them below.

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