When we talk about ‘transition’ in relation to your neuromuscular condition, we mean the process of preparing for, planning and actually moving from child to adult services. Some people have told us they have had excellent help when moving into adult services whereas other people have said that they felt very unsupported.

We are therefore looking to develop a new guide for young people who are going through transition and want to know what your experience of the process has been. All of the feedback you give us will help ensure we provide useful and relevant information to other people.

Please try to answer as many of the following questions as possible. Some of them may not be relevant to you so please do leave those questions blank. If you have any problems with filling in this survey, please do not hesitate to contact us. There is also an opportunity at the end of the survey for you to add any further points you think may be important.

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