Provide information on managing a neuromuscular disorder (respiratory health, nutrition, exercise, working within the healthcare system)
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Provide assistance in advocating for access to resources or supports
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Advocating on issues relating to neuromuscular disorders
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Provide information on clinical trials and clinical research opportunities
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Providing information about progress on research and related issues
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Provide education session(s)
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Provide information about a neuromuscular disorder (diagnosis, symptoms)
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Providing funding to scientific research related to neuromuscular disorders (search for a cure)
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Provide assistance in navigating available supports
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Providing funding to quality of life research related to neuromuscular disorders (for example, improvements to health services, developing new technology for assistive devices, etc.)
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Provide financial assistance
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Support networking and shared learning with other individuals and families affected by a neuromuscular disorder (Chapters, Community Networks, Support Groups)
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