At
SYNERG-IE, we're working to identify the most important unanswered questions about Sjögren’s Disease (SjD). To do this, we’ve partnered with people living with SjD, carers and healthcare professionals. The project is run by RCSI, funded by the Health Research Board, and facilitated by the James Lind Alliance (JLA) as part of the SYNERG-IE programme. Please read this
Participant Information Leaflet before taking part (link opens in a new window).
In our previous survey, participants submitted questions they felt future SjD research should address. More than 1,000 responses were reviewed and grouped into summary questions. Questions already answered by existing research evidence were removed. As a result, 45 unanswered summary questions have been identified as priorities for future research.
In this follow-up survey, we are asking participants to review these 45 summary questions and identify those they consider most important. The survey has two rounds:
· In
Round 1, participants will select questions they feel are most important from the 45 summary questions.
· In
Round 2, participants will be asked to choose up to ten questions from their Round 1 selections that they believe should be prioritised for future research.
After the survey closes, responses will be analysed and a final workshop will be held to agree a top-ten list of priority research questions for SjD.
If you are interested in further information about the JLA Priority Setting Partnership, please follow this link:
Sjögren's Disease (Ireland) PSP project plan | NIHR JLAThis survey closes on Friday 4th September 2026.