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* 1. How old is your Syngap child?

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* 2. Have you done any long term planning?

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* 3. If you answered "Yes" to question #2, please feel free to list any long term planning you've done. If you have not yet done any long term planning or wish not to share , please write "None" or "I don't wish to share".

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* 4. Are there barriers that keep you from long term planning?

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* 5. Have you set up a Supplemental Needs Trust (SNT)?

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* 6. Have you thought about the transition that takes place at age 18?

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* 7. What about the transition when aging out of schools at 21/22?

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* 8. What questions about long term planning do you have?

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* 9. Are there any resources for long term planning you have found useful? If so, please list.

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* 10. Would you be willing to share your experience and what you have learned or would you rather remain anonymous?

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