2027 PMSF Research Grants Program Feedback Survey

Specific symptom-focused research (e.g., epilepsy, gastrointestinal symptoms, sleep, cognition, mood, etc.) - Please specify in next question.

Research across disorders similar to Phelan-McDermid syndrome to identify shared causes, mechanisms, treatments, or approaches.

Improving clinical tests, assessments, or diagnostic tools to make them more accurate, reliable, or accessible.

Focus on adults and adulthood (e.g., adult care, transition to adulthood, living arrangements, educational or vocational needs, etc.).

Biomarker discovery and validation (e.g., blood-based, EEG, immunological, etc.)

Translational research that moves findings from laboratory research toward clinical applications, treatments, or assessments.

Genetics/genomics and other approaches to understanding disease mechanisms.

Patient-centered research, quality of life, or outcomes research.

Quality improvement research aimed at improving practices and care within a clinical setting.