Community Feedback

Dear Community Member,

We need your help!

We are currently reviewing ways in which our organisation delivers some of its activities to you, a member of the HD community. We would like to ask your opinions about two things:

1. Your satisfaction with community events organised by us and any ideas for future imporvement

and

2. Whether you would like to become involved in Friends of Huntington’s Victoria Limited (HVL) and what, in your opinion, the membership of this group should entitle you to.

At the end of the survey, we will also ask a few details about you.

We are asking all these questions so we can improve our activities and deliver initiatives that reflect your needs. If you have any further comments, please do not hesitate to contact the Quality and Community Engagement Coordinator at Huntington’s Victoria on 9818 6333.

Your responses will remain anonymous and confidential.

This section asks about the HV community events
To date, which of the following events organised by HV, have you participated in? (mark all that apply)

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* 1. To date, which of the following events organised by HV, have you participated in? (mark all that apply)

How often do you participate in events organised by HV?

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* 2. How often do you participate in events organised by HV?

How satisfied are you with the quality of the community events that you have attended so far?

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* 3. How satisfied are you with the quality of the community events that you have attended so far?

What did you like the most about the events you participated in? (mark all that apply)

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* 4. What did you like the most about the events you participated in? (mark all that apply)

What did you like the least about the events you participated in? (mark all that apply)

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* 5. What did you like the least about the events you participated in? (mark all that apply)

In your opinion, what three things could make our events better for the community?

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* 6. In your opinion, what three things could make our events better for the community?

In the future, what type of events would you like to participate in?

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* 7. In the future, what type of events would you like to participate in?

This section asks about Friends of HVL
In November 2017, HV was endorsed as a Public Company. This change meant that HV ceased to be a membership-based association.
However, as our members are important to us we have created Friends of HVL as a way of recognising our past, present, and future supporters. 

Friends of HVL
is a membership-based group for people who are:

- Impacted by Huntington’s Disease
- Supporting friends, family or the community facing the challenges of Huntington’s Disease
- Advocating for better services for people with Huntington’s Disease
- Researching treatment and cure of Huntington’s Disease

The membership is free of charge.

The next two questions ask about what, in your opinion, the membership of Friends of HVL should entitle you to.

(Please note that all individuals who subscribe to the HV mailing list already have access to:

each issue of the HV newsletter
regular HD research updates
information about HV community events
invitation to the HV annual meeting).
In addition to the items listed above, please list three other things that you think the membership of Friends of HVL should also entitle you to:

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* 8. In addition to the items listed above, please list three other things that you think the membership of Friends of HVL should also entitle you to:

Would you consider becoming a Friend of HVL?

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* 9. Would you consider becoming a Friend of HVL?

This section asks about you
I am:

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* 10. I am:

On behalf of the team at HV, thank you for your participation!

T