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Care of AYAs with Cancer in Low-Resourced Countries

Survey

The study, titled "Care of AYAs with Cancer in Low-Resourced Countries," is an initiative launched by the SIOP GHN Adolescents and Young Adults Working Group.

It aims to collect vital data on the challenges, gaps, and existing practices in managing adolescent and young adult (AYA) cancer patients. The study explores key areas such as diagnosis, treatment, psychosocial support, clinical trials, and survivorship care within low-resourced countries.

The insights gathered will inform the development of targeted programs and policies to improve AYA cancer care in low-resourced countries.

Your participation in this survey, which takes just 8 minutes to complete, would be highly valuable.
1.First Name(Required.)
2.Last Name(Required.)
3.Email address(Required.)
4.Country
5.City
6.Phone number
7.What is your profession?
8.What type(s) of healthcare facility do you work in? (select all that apply)
9.If you are a pediatric oncologist, what is the maximum age of patients you treat in your practice?
10.Approximately how many cancer patients in the AYA age group (as defined in your practice) do you treat annually?
11.Does your institution have a dedicated AYA oncology program or department?
12.If no, is there any interest of financial plans to establish one?
13.What types of support services are available to AYAs at your institution, or can be arranged by your team? (Select all that apply)
14.Are there AYA-specific clinical trials accessible to your patients?
15.If yes, name the diseases included in these trials:
16.Do AYA patients in your institution have access to financial support programs for their treatment?
17.If yes, what kind of programs are available?
18.What are the most common barriers to timely diagnosis and treatment for AYAs in your region? (Select all that apply)
19.What percentage of AYA patients in your practice experience treatment abandonment or non-compliance?
20.What are the primary factors contributing to AYA patients not completing treatment in your experience? (Select all that apply)(Required.)
21.How would you rate the availability of psychosocial support for AYAs at your institution?
22.Have you received any specific training or education on managing AYA cancer patients?
23.If yes, what was the focus of the training?
24.Does your institution provide long-term survivorship care for AYAs, whether through pediatric, adult, or combined programs?
25.If yes, what services are included?
26.If yes, how often are late effects of treatment assessed for AYAs?