ICN LOCC Questionnaire

Thank you for taking the LOCC Questionnaire! While COVID-19 may have more of a say than we do in how we set up conferences going forward, we feel that gathering feedback from our community is important. We are looking to gather feedback on future community conferences, as well as a new ICN project.

Question Title

* Name

Question Title

* Email

Question Title

* Role

Advanced Care Practitioner

Coordinator – Data

Coordinator – Lead

Coordinator – Research Improvement

Dietitian

Parent

Patient

Physician

Psychologist

Social Worker

Other (please specify)

Please rank your preferences (1 being most preferred) regarding the following aspects of the Community Conference and how important each aspect is to you in making a decision to attend.

* = Current ICN Community Conference Model

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* How would you prefer to pay to attend community conferences?

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* How important is this to you in making a decision to attend?

Not at all important

Unimportant

Neither Important or Unimportant

Somewhat Important

Very Important

Not at all important

Unimportant

Neither Important or Unimportant

Somewhat Important

Very Important

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* What days would you prefer we host community conferences?

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* How important is this to you in making a decision to attend?

Not at all important

Unimportant

Neither Important or Unimportant

Somewhat Important

Very Important

Not at all important

Unimportant

Neither Important or Unimportant

Somewhat Important

Very Important

Please review the types of conferences we can host:

National In-Person Conference*: This is the current model for ICN Community Conferences. The entire network is invited to attend a two-day conference in a physical location.

National Live Online Conference: The agenda would be similar to in-person conferences, but the entire conference would be held online over a two-day period. Attendees can join at their convenience based on clinic, school, or family duties.

Regional In-Person Conference: A region would be a group of 6-12 centers in geographic proximity. Regions would have the opportunity to work on a project together that is relevant to their region. ICN piloted this concept with the New England Region in November 2019 and other Learning Networks have had success with this model.

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* What annual schedule of conferences do you prefer?

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* How important is this to you in making a decision to attend?

Not at all important

Unimportant

Neither Important or Unimportant

Somewhat Important

Very Important

Not at all important

Unimportant

Neither Important or Unimportant

Somewhat Important

Very Important

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* If ICN were to host only one in-person national conference a year, what season would you prefer the conference be held?

Question Title

* How important is this to you in making a decision to attend?

Not at all important

Unimportant

Neither Important or Unimportant

Somewhat Important

Very Important

Not at all important

Unimportant

Neither Important or Unimportant

Somewhat Important

Very Important

Question Title

* Please provide any additional feedback or comments regarding ICN Community Conferences.

A-LINK (Autoimmune Liver Improvement Network for Kids) is a new Learning Network being developed using the ICN platform and quality improvement strategies to engage GI centers, gastroenterologists, hepatologists, parents, and patients in improving outcomes for Pediatric Autoimmune Liver Disease and Primary Sclerosing Cholangitis. The A-LINK team is interested in connecting with those in the ICN network that are interested in learning more about the developing network.

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* Do you have any experience with Autoimmune Hepatitis or Primary Sclerosing Cholangitis?

Yes

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* Would you be interested in receiving updates about the A-LINK learning network?

Yes

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* If you are a healthcare provider, in which ways would your center be interested in participating in the learning network?

Involvement in planning the measures for the registry

Participating by enrolling patients in the registry

Both

Neither