The National Council of Urban Indian Health (NCUIH) and Centers for Disease Control (CDC) are working together to identify how race, ethnicity, and tribal affiliation are recorded on death certificates.  Death certificates are crucial to help public health experts identify and respond to disease trends.  Previous research has shown that the recording of demographic information on death certificates is not always consistent between locations, and American Indian and Alaska Natives people are often “misclassified” as a result.  Misclassification means that the race that is recorded on a person's death certificate does not match the race that this person self-reported on the Census or another survey during their lifetime.

The NCUIH and CDC know that funeral directors fill a vital role for the public by collecting this information. The following survey will ask some questions about your experience, with the goal of better understanding how the collection of demographic information works in practice.  Please be candid – the information we collect is not meant to judge any director or their business, but simply to gather an understanding of common practice.  The information will be used to inform future trainings, resources, and other needs to improve the process. The information you provide will be kept confidential, and you can choose not to provide a name and contact information if you would prefer not to be identified.  This survey will take about 10 minutes, depending on the amount of feedback you share. 

If you have any questions or feedback, please feel free to contact Andrew Kalweit at (202) 544-0344 or akalweit@ncuih.org.

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* 2. How many years have you been working in this profession?

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* 3. Are you a member of any of the following professional organizations? check all that apply

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* 4. Is the funeral home you work for...

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* 6. I would feel comfortable asking a family member or other informant about the deceased party's…

  Strongly Disagree Disagree Somewhat Disagree Somewhat Agree Agree Strongly Agree
... Race
... Hispanic origin
... Tribal affiliation

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* 7. Has a family member or other informant ever expressed any concerns, discomfort, and/or confusion about providing the deceased party’s…

  Yes No
...Race?
...Hispanic origin?
... Tribal affiliation?

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* 8. How often is the race, Hispanic origin, or Tribal affiliation of the deceased party left blank on a death certificate?

  Never Sometimes Often Always
...Race?
...Hispanic origin?
... Tribal affiliation?

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* 9. The last time you or your staff were trained on collecting the demographic items on the death certificate, the training was offered by a... (check all that apply)

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* 10. How frequently do you take part in training and/or continuing education opportunities?

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* 11. Would you like to have more trainings?

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* 12. Please provide any suggestions you have regarding the collection of race, Hispanic origin and/or tribal affiliation from family members or other informants.

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* 13. Do you think the families you serve would benefit from more awareness about the importance of providing accurate death certificate information?

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* 14. Are you aware that the CDC's National Center for Health Statistics provides a Funeral Directors' Handbook on Death Registration and Fetal Death Reporting?

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