GI Symptoms & Nutrition in Pregnancy Survey

As women with CF reach reproductive age, become pregnant, and deliver babies, providers must consider their individual nutritional needs during pregnancy. To better understand these needs, and to help create resources for providers who care for pregnant people with CF, researchers from the University of Texas Southwestern are surveying adults with CF who have been pregnant in recent years about their experiences with digestive system symptoms and nutrition during pregnancy.

The survey is open to people who:

Are living with CF,
Are age 18 or older, and
Have been pregnant at least once between 2019 and today

Please note that this questionnaire contains questions about pregnancy, fertility and miscarriage. We understand that these topics can be distressing, particularly for those who have experienced loss or trauma. Your well-being is important. You may skip any question or stop at any time.

This anonymous survey may take up to 20 minutes to complete. Your information and responses are confidential. Anonymized responses will be shared with external researchers and may be used for research, education, or program communications. Your responses will be used to advance knowledge of nutrition and gastrointestinal issues in pregnancy and cystic fibrosis as well as help guide clinicians who care for pregnant people with CF.

If you have any questions, please contact communityvoice@cff.org or stacy.mathews@utsouthwestern.edu.

By proceeding past this page, you are consenting to participating in this research study.

Question Title

* 1. What is your current age?

Question Title

* 2. Which of the following apply to you?
Please select all that apply

I am an adult (18+ years old) living with cystic fibrosis

I am the parent of someone living with cystic fibrosis

I am a caregiver of someone living with cystic fibrosis

I am the spouse/partner of someone living with cystic fibrosis

I have an immediate family member living with cystic fibrosis

I am the grandparent of someone living with cystic fibrosis

I have a friend living with cystic fibrosis

I have lost a loved one with cystic fibrosis

Other (please specify)

None of the above

Question Title

* 3. Between 2019 and today, have you ever been pregnant?
Please select all that apply.

Yes, I have had one or more pregnancies

Yes, I am currently pregnant

No, I have never been pregnant

Question Title

* 4. How would you best describe yourself?
Please select all that apply.

American Indian or Alaska Native (for example, Navajo Nation, Blackfeet Tribe of the Blackfeet Indian Reservation of Montana, Nome Eskimo Community, Aztec, Maya)

Asian (for example, Chinese, Asian Indian, Filipino, Vietnamese, Korean, Japanese)

Black, African, or African American (for example, African American, Jamaican, Haitian, Nigerian, Ethiopian, Somali)

Hispanic or Latino (for example, Mexican, Brazilian, Puerto Rican, Salvadoran, Cuban, Guatemalan)

Middle Eastern or North African (for example, Lebanese, Palestinian, Egyptian, Iraqi, Israeli)

Native Hawaiian or Pacific Islander (for example, Native Hawaiian, Samoan, Chamorro, Tongan, Fijian, Marshallese)

White (for example, English, German, Irish, Italian)

Prefer to self-describe:

Prefer not to answer

Question Title

* 1. What is your current age?

Question Title

* 2. Which of the following apply to you?Please select all that apply

Question Title

* 3. Between 2019 and today, have you ever been pregnant? Please select all that apply.

Question Title

* 4. How would you best describe yourself?Please select all that apply.

* 2. Which of the following apply to you?
Please select all that apply

* 3. Between 2019 and today, have you ever been pregnant?
Please select all that apply.

* 4. How would you best describe yourself?
Please select all that apply.