Preparing for Clinical Trials

Beyond Batten Disease Foundation is asking families to answer the following questions to help us prepare for a clinical trial to treat juvenile Batten (CLN3) disease and open the door for other forms of Batten and lysosomal storage disease. Your answers WILL affect how the trial is designed to provide the highest chance for the most benefit. Your answers WILL NOT effect whether your child is/is not included in the trial.  

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