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1. How would you rate your overall care?

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2. How would you rate communication?

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3. Was your diagnosis/ condition explained in a way you could understand?

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4. Were you given the opportunity to ask questions?

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5. Were your treatment options explained clearly to you?

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6. Were the potential benefits and side effects of any medication / treatment explained clearly to you?

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7. Were you actively involved in your treatment plan? ( i.e. explanation of why it is necessary, effects, long-term goals?)

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8. Were you given a review appointment before leaving clinic or at time of telephone review?

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9. Were you given clear details of who to contact if you experienced difficulties with treatment before next hospital review?

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10. Were you given details of who to contact should your symptoms worsen or you have concerns about your illness before next hospital review?

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11. Were you given clear details of HOW to contact this resource?

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12. Do you feel you receive emotional/ psychological support to help manage your condition

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13. Do you think this type of support should be made available?

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14. Were you provided with written information about your condition?

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15. If no, how did you find out more information?

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16. Would you rather be provided with written information sheets or provided with a website to access at home?

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17. Were you given information or support regarding third sector organisations? eg charities or self-help organisations?

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18. Are you treated at a specialised vasculitis clinic?

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19. What do you think are the most important things that we should be encouraging all teams to do when they care for patients with vasculitis?

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20. Is there anything else you would like to tell us about your experiences?

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21. Which health board are you treated in?

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