Are you a patient or carer of someone receiving either home parenteral or enteral (tube feeding) nutrition living in Ireland? 

If so, we want to hear from you.

Who we are

The Irish Society for Clinical Nutrition and Metabolism (IrSPEN) is a non-profit, voluntary organisation of doctors, dietitians, nurses and other healthcare professionals dedicated to improving nutritional care of patients in Ireland. 
 
Have Your Say

If you are a patient on nutrition support at home, or care for someone that is, please take just 5 minutes to complete our short survey, designed to find out more about the support needs of home nutrition patients around the country. 

Why we ask

As many IrSPEN members are healthcare professionals who are involved with patients with complex nutritional needs, we want to know how we can help improve the support and information available to patients on long term enteral or parenteral nutrition at home. 

Patient Support Meeting – Spring 2020

In the UK, an organisation called Patients on Intravenous and Nasogastric Therapy (PINNT) provides support and an online forum for patients on home feeding, but in Ireland, no such patient organisation currently exists.  With this in mind, IrSPEN, in conjunction with PINNT, is planning to organise a meeting for patients and carers in a central location in Dublin in late spring, where there will be an opportunity to hear from invited speakers on relevant topics and share experiences.  Your responses to the survey will help us tailor the programme to meet expectations, while giving us a better idea of the support needs of patients around the country and the interest in having other events and support days. 

How to complete the survey

To request a paper version of the survey please contact your home nutrition provider. At the end of the survey, you will be given the option of providing IrSPEN with your contact details so that we can send you further information and joining details for the Spring patient meeting. Your personal information will remain separate from the results of the survey to maintain anonymity and will not be used other than for the purposes stated.

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* 1. Which of the following best describes you?

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* 2. If you are the carer, which best describes your relationship with the patient?

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* 3. Patient gender?

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* 4. Patient age (yrs)?

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* 5. Which of the following best describes the way you get your nutrition?

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* 6. How long is it since you first started getting nutrition support e.g through a tube or a line in your vein?

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* 7. Which hospital or community services do you attend for monitoring of your nutrition support?

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* 8. Are you currently a member of the UK based charity PINNT?

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* 9. Would you like there to be an organisation for people receiving nutrition support based locally (offering the opportunity to have local meetings / events)?

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* 10. Would you like the opportunity to attend a group meeting organised by healthcare professionals and patients?

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* 11. What part of Ireland do you live in?

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* 12. Time of the day (pick any/all that would be possible)

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* 13. Would you prefer to attend a group meeting in person or online as a webinar?

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* 14. Please let us know of any other special requirements or constraints?

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* 15. Can you tell us what would interest you most about attending a patient support event or having a local organisation to join or access? Tick as many as you feel relevant to you:

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* 16. What way would you prefer to communicate with other people and receive information from a support group? (tick as many as apply)

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* 17. Please add any other comments or suggestions

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* 18. If you would like IrSPEN secretary to contact you about its patient support day meeting and to provide an update on its work to help support patients on enteral/parenteral nutrition further, please provide your contact details.
No personal information will be used other than for the purpose of contacting you with information regarding a patient meeting and your information will not be shared. 

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