Disability Healthcare

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* 1. What is your profession and do you have a relationship with a person with an intellectual disability? (Choose all of the options that apply.)

Dietitian

Disability support worker

Diabetes educator/Credentialled Diabetes Educator

Developmental disability trained nurse

Developmental educator

Enrolled nurse

Registered Nurse

Community Nurse

Exercise physiologist

General practitioner

Manager of a disability focussed service

Pharmacist

Psychologist

Podiatrist

I am the parent of a person with an intellectual disability

I am the sibling of a person with an intellectual disability

I have a relative who is a person with an intellectual disability (not a child or sibling)

Other (please specify).

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* 2. Move the slider below to choose a score out of 100 to indicate your rating of the ability of the current South Australian healthcare system to consistently provide high quality healthcare to people with intellectual disability. (Move the slider to the number that best describes your response, taking into account both primary and acute healthcare services.)

100

Clear

i We adjusted the number you entered based on the slider’s scale.

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* 3. Why did you choose this number? Please write a brief explanation for your number choice in the space below.

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* 4. What do you believe is/are the major challenge/s we face here in South Australia when it comes to providing people with intellectual disability with quality healthcare? (Write your response in the comments box below.)

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* 5. Choose a response to the statements below that best describes your level of agreement with each statement related to providing quality healthcare to people with intellectual disability in South Australia.

	Strongly agree	Agree	Neither agree nor disagree	Disagree	Strongly disagree
People with intellectual disability consistently receive quality health care in South Australia.	People with intellectual disability consistently receive quality health care in South Australia. Strongly agree	People with intellectual disability consistently receive quality health care in South Australia. Agree	People with intellectual disability consistently receive quality health care in South Australia. Neither agree nor disagree	People with intellectual disability consistently receive quality health care in South Australia. Disagree	People with intellectual disability consistently receive quality health care in South Australia. Strongly disagree
People with intellectual disability consistently receive high quality healthcare from South Australian hospitals.	People with intellectual disability consistently receive high quality healthcare from South Australian hospitals. Strongly agree	People with intellectual disability consistently receive high quality healthcare from South Australian hospitals. Agree	People with intellectual disability consistently receive high quality healthcare from South Australian hospitals. Neither agree nor disagree	People with intellectual disability consistently receive high quality healthcare from South Australian hospitals. Disagree	People with intellectual disability consistently receive high quality healthcare from South Australian hospitals. Strongly disagree
General practitioners have high levels of knowledge and skills in the care of people with an intellectual disability.	General practitioners have high levels of knowledge and skills in the care of people with an intellectual disability. Strongly agree	General practitioners have high levels of knowledge and skills in the care of people with an intellectual disability. Agree	General practitioners have high levels of knowledge and skills in the care of people with an intellectual disability. Neither agree nor disagree	General practitioners have high levels of knowledge and skills in the care of people with an intellectual disability. Disagree	General practitioners have high levels of knowledge and skills in the care of people with an intellectual disability. Strongly disagree
Nurses working in general practice have high levels of knowledge and skills in the care of people with an intellectual disability.	Nurses working in general practice have high levels of knowledge and skills in the care of people with an intellectual disability. Strongly agree	Nurses working in general practice have high levels of knowledge and skills in the care of people with an intellectual disability. Agree	Nurses working in general practice have high levels of knowledge and skills in the care of people with an intellectual disability. Neither agree nor disagree	Nurses working in general practice have high levels of knowledge and skills in the care of people with an intellectual disability. Disagree	Nurses working in general practice have high levels of knowledge and skills in the care of people with an intellectual disability. Strongly disagree
Support workers have high levels of healthcare knowledge.	Support workers have high levels of healthcare knowledge. Strongly agree	Support workers have high levels of healthcare knowledge. Agree	Support workers have high levels of healthcare knowledge. Neither agree nor disagree	Support workers have high levels of healthcare knowledge. Disagree	Support workers have high levels of healthcare knowledge. Strongly disagree
We have enough health services experienced in supporting people with intellectual disability in South Australia.	We have enough health services experienced in supporting people with intellectual disability in South Australia. Strongly agree	We have enough health services experienced in supporting people with intellectual disability in South Australia. Agree	We have enough health services experienced in supporting people with intellectual disability in South Australia. Neither agree nor disagree	We have enough health services experienced in supporting people with intellectual disability in South Australia. Disagree	We have enough health services experienced in supporting people with intellectual disability in South Australia. Strongly disagree
Specialist disability health care services are not required in South Australia to improve health outcomes in people with intellectual disability.	Specialist disability health care services are not required in South Australia to improve health outcomes in people with intellectual disability. Strongly agree	Specialist disability health care services are not required in South Australia to improve health outcomes in people with intellectual disability. Agree	Specialist disability health care services are not required in South Australia to improve health outcomes in people with intellectual disability. Neither agree nor disagree	Specialist disability health care services are not required in South Australia to improve health outcomes in people with intellectual disability. Disagree	Specialist disability health care services are not required in South Australia to improve health outcomes in people with intellectual disability. Strongly disagree

Do you have any recent examples of healthcare provided to people with intellectual disability that support why you chose the ratings above?

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* 6. Are you aware of any examples of individual experiences where a person with an intellectual disability has received quality healthcare? (Please provide a brief summary and the name of the service below.)

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* 7. What do you believe needs to happen to provide quality healthcare to people with an intellectual disability in South Australia? (Choose all options that apply.)

Training of health professionals working in hospitals about the care of people with intellectual disability

Training of health professionals working in general practice about the care of people with intellectual disability

Improved knowledge and skills of support workers about supporting people with intellectual disability to access quality healthcare

Introduction of low literacy resources for health professionals to use with people with intellectual disability to help them to understand more about their healthcare needs

Introduction of a health assessment tool carers/person with intellectual disability completes before seeing their general practitioner to do their comprehensive annual health review

Formation of a Ministerial Advisory Council, or similar, to create a South Australian action plan to improve health outcomes of people with intellectual disability.

Conduct a forum to gather ideas and suggestions from disability and health providers to improve the health system's ability to provide quality healthcare of people with a disability in South Australia

Do an online survey to gather feedback from consumers about their experiences in the healthcare system

Have a specialty service e.g. Centre for Disability Health, continue to provide a service for people with intellectual disability (This service is currently being reviewed with recommendations to be made in the future)

Create a special interest group of health practitioners with a special interest in the healthcare of people with intellectual disability to develop and share their knowledge and skills with the broader workforce.

Increase access to health professionals with a special interest in the care of people with intellectual disability by creating hubs for Medicare reimbursed services to be provided by these health professionals

Increase utilisation of health professionals with advanced knowledge and skills working in primary care to provide assessment and advice (fee for service paid by SA Health) for identified individuals in order to shorten their length of hospital stay or improve discharge planning to prevent re- admission.

Greater utilisation of the My Health Records of people with intellectual disability to store and share information between medical services

Creation of a health wallet for people with intellectual disability modeled on that provided for all new babies in South Australia.

Improved access to NDIS funding for people with intellectual disability stuck in hospital

Legislation to enact the responsibility South Australian health services have in ensuring people with intellectual disability have equal access to quality healthcare across acute and primary care health services.

Promotional campaign to South Australian health services to encourage a welcoming approach to the healthcare of people with intellectual disability

Do you have any other suggestions to make that could help improve the healthcare of South Australians with an intellectual disability? Please write them in the space below.

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* 8. Have you heard of Queensland University's Comprehensive Health Assessment Plan (CHAP) that can be used to support general practitioners to conduct a comprehensive, annual health assessment of people with intellectual disability?

Yes

If yes, please write in the space provided what you think of the CHAP tool, and any examples of the impact it has had on people with intellectual disability?

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* 9. The Chronic Health Assessment Plan (CHAP) for people with intellectual disability is a health assessment tool with a section for the person with intellectual disability and their support person to fill in before taking it to the GP. The GP then completes the annual health assessment using the paper based form. Please choose a response that best describes your level of agreement with the following statements about the potential use of the CHAP, or something similar, in South Australia. (Choose all options that apply)

	Strongly Agree	Agree	Neither agree or disagree	Disagree	Strongly Disagree
The CHAP tool would improve the quality of annual assessment of people with intellectual disability in South Australia.	The CHAP tool would improve the quality of annual assessment of people with intellectual disability in South Australia. Strongly Agree	The CHAP tool would improve the quality of annual assessment of people with intellectual disability in South Australia. Agree	The CHAP tool would improve the quality of annual assessment of people with intellectual disability in South Australia. Neither agree or disagree	The CHAP tool would improve the quality of annual assessment of people with intellectual disability in South Australia. Disagree	The CHAP tool would improve the quality of annual assessment of people with intellectual disability in South Australia. Strongly Disagree
The CHAP tool provides GPs with more information about the health of people with intellectual disability before they do their annual assessment because of the information provided by the person and their support person.	The CHAP tool provides GPs with more information about the health of people with intellectual disability before they do their annual assessment because of the information provided by the person and their support person. Strongly Agree	The CHAP tool provides GPs with more information about the health of people with intellectual disability before they do their annual assessment because of the information provided by the person and their support person. Agree	The CHAP tool provides GPs with more information about the health of people with intellectual disability before they do their annual assessment because of the information provided by the person and their support person. Neither agree or disagree	The CHAP tool provides GPs with more information about the health of people with intellectual disability before they do their annual assessment because of the information provided by the person and their support person. Disagree	The CHAP tool provides GPs with more information about the health of people with intellectual disability before they do their annual assessment because of the information provided by the person and their support person. Strongly Disagree
If disability organisations provided their clients with a copy of the CHAP tool and supported them to have their annual health assessment more people with intellectual disability would receive an annual health check up.	If disability organisations provided their clients with a copy of the CHAP tool and supported them to have their annual health assessment more people with intellectual disability would receive an annual health check up. Strongly Agree	If disability organisations provided their clients with a copy of the CHAP tool and supported them to have their annual health assessment more people with intellectual disability would receive an annual health check up. Agree	If disability organisations provided their clients with a copy of the CHAP tool and supported them to have their annual health assessment more people with intellectual disability would receive an annual health check up. Neither agree or disagree	If disability organisations provided their clients with a copy of the CHAP tool and supported them to have their annual health assessment more people with intellectual disability would receive an annual health check up. Disagree	If disability organisations provided their clients with a copy of the CHAP tool and supported them to have their annual health assessment more people with intellectual disability would receive an annual health check up. Strongly Disagree
The CHAP tool is better than the current Medicare template used to assess people with intellectual disability.	The CHAP tool is better than the current Medicare template used to assess people with intellectual disability. Strongly Agree	The CHAP tool is better than the current Medicare template used to assess people with intellectual disability. Agree	The CHAP tool is better than the current Medicare template used to assess people with intellectual disability. Neither agree or disagree	The CHAP tool is better than the current Medicare template used to assess people with intellectual disability. Disagree	The CHAP tool is better than the current Medicare template used to assess people with intellectual disability. Strongly Disagree
A paper based CHAP tool would be helpful until a computerised option could be created.	A paper based CHAP tool would be helpful until a computerised option could be created. Strongly Agree	A paper based CHAP tool would be helpful until a computerised option could be created. Agree	A paper based CHAP tool would be helpful until a computerised option could be created. Neither agree or disagree	A paper based CHAP tool would be helpful until a computerised option could be created. Disagree	A paper based CHAP tool would be helpful until a computerised option could be created. Strongly Disagree
The CHAP tool will only work if it is a computerised template.	The CHAP tool will only work if it is a computerised template. Strongly Agree	The CHAP tool will only work if it is a computerised template. Agree	The CHAP tool will only work if it is a computerised template. Neither agree or disagree	The CHAP tool will only work if it is a computerised template. Disagree	The CHAP tool will only work if it is a computerised template. Strongly Disagree

Please write in the space provided any thing else you would like to say in relation to the potential use of the CHAP tool in South Australia.

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* 10. If you could put three (3) strategies or resources in place to improve the health status of people with intellectual disability in South Australia, what would they be? (Please write your responses in the space below.)