Skip to content

NPWH and Lipedema Foundation Survey

Overview

At the National Association of Nurse Practitioners in Women’s Health (NPWH), we are committed to empowering advanced practice providers (APPs) with the knowledge and tools to address emerging and often overlooked conditions in women’s health. That's why we’re excited to partner with the Lipedema Foundation to develop a new micro-credential focused on the diagnosis and treatment of this progressive and underdiagnosed disease. In the U.S. alone, more than 17 million women are believed to be affected, based on estimates from the Foundation and supporting studies.

The Lipedema Foundation, a 501(c)(3) nonprofit, is dedicated to advancing research and improving care through a collaborative approach that includes patients, clinicians, and scientists. Their mission is to define, diagnose, and develop effective treatments, grounded in investments in the biological, genetic, and clinical understanding of the disease.

This initiative aims to equip APPs with evidence-based education to support earlier recognition and better management for affected individuals. As we design the course, we’re seeking your input on your current awareness, clinical exposure, and confidence in managing this condition. Your perspective is essential to shaping a resource that’s practical, relevant, and impactful in everyday care.

Please take just 5 minutes to complete a brief 10-question survey. Your feedback will directly inform the development of this vital educational tool.
1.Rate your comfort level with recognizing Lipedema.(Required.)
Not at all comfortable
Slightly uncomfortable
Neutral
Somewhat comfortable
Very comfortable
2.Have you ever diagnosed a patient with Lipedema in your clinic?(Required.)
3.Rate your comfort level with diagnosing Lipedema.(Required.)
Not at all comfortable
Slightly uncomfortable
Neutral
Somewhat comfortable
Very comfortable
4.Do you feel comfortable offering patient education and a treatment plan for patients with Lipedema?(Required.)
5.If you are offering treatment for patients, please indicate all of the following options you provide.(Required.)
6.What is your primary area of practice?(Required.)
7.If NPWH were to offer a pre-conference micro-credential course (3 hours) about diagnosing/treating Lipedema, would you be interested in attending?(Required.)
8.If you are not interested in attending a course like this, why?(Required.)
9.If you are familiar with Lipedema, how did you first learn about it?(Required.)
10.Please let us know what you would be most interested in learning about in relation to Lipedema.(Required.)